EN
Parents of disabled children not only deal with raising a child but also with their disability. The whole family experiences various implications as their lives are strongly affected by the disability. Undeniably, the whole life depends on a disability, which forces parents to redefine the family life and give it a new meaning. The conducted research was located in the stream of constructivist and interpretative research. The attempt of meeting and understanding the world the parents preserve in their memories allowed togain ‘genuine’ knowledge about a family with a chronically ill child. Told narrations present difficult parenthood and everyday problems that a family must deal with. Parents’ biographies concern not only weaknesses which they have to face fighting for normal life for their children but also show determination in their constant struggle in everyday life. Everyday life is very complex for them. Thus, the reality that the separents create is full of both negative and positive emotions, moments of happiness, love and mutual respect.