Quality of life of parents of children with cerebral palsy

• Authors: Okurowska –Zawada, B , Kułak, W , Wojtkowski, J , Sienkiewicz, D , Paszko-Patej, G

Abstracts

EN

Purpose: The aim of the study was to assess the quality of life of parents of children with cerebral palsy. Materials and methods: The study included 40 parents of children with cerebral palsy treated at the Department of Pediatric Rehabilitation of the Medical University of Bialystok. The WHOQOL-BREF questionnaire was used as a research tool; it enables obtaining a quality of life profile in four domains: physical health, psychological, social relationships and environment. The severity of a child's movement disorders was assessed using the Gross Motor Function Classification System (GMFCS). Results: In the studied group of parents of children with cerebral palsy, more than half described their quality of life as good and was pleased with their health. The largest differences occurred in parents of children with cerebral palsy in the environment domain, p=0.0068, and the psychological domain, p=0.010. Quality of life in all four domains was assessed as lower in parents of children with cerebral palsy compared with parents of healthy children. Only in the evaluation of health care facilities parents of children with cerebral palsy assessed them better than parents of healthy children. Conclusion: Parents of children with cerebral palsy describe their quality of life as good and are satisfied with their health.

Keywords

EN

quality of life; parents; cerebral palsy

• Publisher: Uniwersytet Medyczny w Białymstoku
• Journal: Progress in Health Sciences
• Year: 2011
• Volume: 1
• Issue: 1
• Pages: 116-123

Contributors

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Okurowska –Zawada, B

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Kułak, W

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Wojtkowski, J

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Sienkiewicz, D

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Paszko-Patej, G