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2020 | 1/45 | 171-184

Article title

Prisoners of Care: The experience of Loneliness among Caregivers of Individuals with Alzheimer’s Disease

Selected contents from this journal

Title variants

PL
Więźniowie opieki: doświadczenie samotności pośród opiekunów osób cierpiących na chorobę Alzheimera

Languages of publication

EN

Abstracts

EN
Adjusting to an Alzheimer’s disease diagnosis is a complex process. Caregivers tend to experience feelings of loneliness and isolation, which in turn may have adverse effects on their well-being. Although the detrimental effects of caregiving on psychological and physical health are well documented, more research is needed to give a comprehensive portrait of the caregiving experience, especially in the areas of aloneness and social isolation. Loneliness remains a neglected aspect of the caregiving experience. Results from this study offer important insights into the caregiving experience for psychologists and other healthcare professionals.
PL
Przystosowanie się do choroby Alzheimera jest złożonym procesem. Opiekunowie doświadczają samotności i izolacji, co może niekorzystnie wpływać na ich samopoczucie. Mimo iż negatywny wpływ, jaki może wywrzeć sprawowanie opieki na zdrowie psychiczne i fizyczne, został potwierdzony w wielu badaniach, nie udało się jeszcze uzyskać kompleksowego portretu opiekuna i jego doświadczeń, zwłaszcza jeśli chodzi o doświadczenie samotności i izolacji społecznej. Samotność pozostaje zaniedbanym aspektem doświadczenia opiekuńczego. Wyniki tego badania oferują ważne informacje na temat doświadczenia w opiece zarówno dla psychologów, jak i innych osób zaangażowanych w pomoc osobom starszym.

Year

Volume

Pages

171-184

Physical description

Contributors

  • University of Szczecin
  • University of Szczecin
  • University of Szczecin

References

  • Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S. & Lachs, M. S. (2014). Caregiver Burden: A Clinical Review. JAMA, 311(10), 1052–1060. DOI:10.1001/jama.2014.304
  • Alzheimer’s Association (2019). Alzheimer’s Disease Facts and Figures. Alzheimer’s and Dementia, 15(3), 321-387.
  • Ayalon, L., Shiovitz-Ezra, S. & Palgi, Y. (2013). Associations of loneliness in older married men and women. Aging & Mental Health, 17(1), 33-39. DOI:10.1080/13607863.2012.702725
  • Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, CA: Sage Publications, Inc.
  • Brodaty, H. & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in clinical neuroscience, 11(2), 217–228.
  • De Frias, C. M., Tuokko, H. & Rosenberg, T. (2005). Caregiver physical and mental health predicts reactions to caregiving. Aging and Mental Health, 9(4), 331-336. DOI: 10.1080/13607860500089674.
  • De Vugt, M. E., Stevens, F., Aalten, P., Lousberg, R., Jaspers, N., Winkens, I., … Verhey, F. R. J. (2003). Behavioural disturbances in dementia patients and quality of the marital relationship. International Journal of Geriatric Psychiatry, 18(2), 149-154. https://doi.org/10.1002/gps.807.
  • Fauth, E. B., Femia, E. E. & Zarit, S. H. (2016). Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being. Aging and Mental Health, 20(9), 888–898. DOI:10.1080/13607863.2015.1049114.
  • Grunfeld, E., Coyle, D., Whelan, T., Clinch, J., Reyno, L., Earle, C. C., … Glossop, R. (2004). Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ: Canadian Medical Association Journal (journal de l’Association medicale Canadienne), 170(12), 1795–1801. DOI:10.1503/cmaj.1031205.
  • Holt-Lunstad, J., Smith, T. B. & Layton, J. B. (2010). Social Relationships and Mortality Risk: A Meta-analytic Review. PLoS Medicine, 7(7), e1000316. https://doi.org/10.1371/journal.pmed.1000316.
  • Karantzoulis, S. & Galvin, J. E. (2011). Distinguishing Alzheimer’s disease from other major forms of dementia. Expert Review of Neurotherapeutics, 11(11), 1579–1591. DOI:10.1586/ern.11.155.
  • Lavretsky, H. (2005). Stress and depression in informal family caregivers of patients with Alzheimer’s disease. Aging Health 1(1), 117-133. https://doi.org/10.2217/1745509X.1.1.117.
  • Lee, K., Martin, P. & Poon, L. W. (2017). Predictors of caregiving burden: impact of subjective health, negative affect, and loneliness of octogenarians and centenarians. Aging and Mental Health, 21(1), 1214-1221. https://doi.org/10.1080/13607863.2016.1206512
  • Lepore, M., Ferrell, A. & Wiener, J. M. (2017). Living Arrangements of People with Alzheimer’s Disease and Related Dementias: Implications for Services and Supports. Research Summit on Dementia Care. https://aspe.hhs.gov/system/files/pdf/257966/LivingArran.pdf
  • Levinger, G. & Huston, T. L. (1990). The social psychology of marriage. In T. Bradbury & F. Fincham (Eds.), The Psychology of Marriage (pp. 19-58). New York, NY: Guilford Press.
  • Nieminen, T., Prättälä, R., Martelin, T., Härkänen, T., Hyyppä, M. T., Alanen, E. & Koskinen, S. (2013). Social capital, health behaviours and health: a population-based associational study. BMC public health, 13, 613. DOI:10.1186/1471-2458-13-613.
  • Perlman, D. & Peplau, L. A. (1981). Toward a Social Psychology of Loneliness. In: S. Duck & R. Gilmour (eds.), Personal Relationships in Disorder (pp. 31–56). London, UK: Academic Press.
  • Pinquart, M. & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267. http://dx.doi.org/10.1037/0882-7974.18.2.250.
  • Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W. & Ferri, C. P. (2013). The global prevalence of dementia: a systematic review and metaanalysis. Alzheimer’s & Dementia, 9, 63–75. e62. DOI: 10.1016/j.jalz.2012.11.007.
  • Rafnsson, S. B., Orrell, M., d’Orsi, E., Hogervorst, E. & Steptoe, A. (2017). Loneliness, Social Integration, and Incident Dementia Over 6 Years: Prospective Findings From the English Longitudinal Study of Ageing. The Journals of Gerontology: Series B, gbx087, https://doi.org/10.1093/geronb/gbx087.
  • Richard, A., Rohrmann, S., Vandeleur, C. L., Schmid, M., Barth, J. & Eichholzer, M. (2017). Loneliness is adversely associated with physical and mental health and lifestyle factors: Results from a Swiss national survey. PLoS ONE 12(7), e0181442. https://doi.org/10.1371/journal.pone.0181442
  • Rokach, A. (2012). Loneliness Updated: An Introduction. The Journal of Psychology, 146(1-2), 1-6. DOI: 10.1080/00223980.2012.629501.
  • Saumure, K. & Given, L. M. (2008). Convenience sample. In L. M. Given (ed.), The Sage Encyclopedia of Qualitative Research Methods (pp. 124-125). Thousand Oaks, CA: Sage Publications.
  • Schulz, R. & Eden, J. (2016). Families Caring for an Aging America. Washington (DC): National Academies Press (US). Retrieved from: https://www.ncbi.nlm.nih.gov/books/NBK396398/.
  • Sharma, N., Chakrabarti, S. & Grover, S. (2016). Gender differences in caregiving among family - caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 717. DOI:10.5498/wjp.v6.i1.7
  • Singleton, D., Mukadam, N., Livingston, G. & Sommerlad, A. (2017). How people with dementia and carers understand and react to social functioning changes in mild dementia: a UK-based qualitative study. BMJ open 7(7), e016740. DOI:10.1136/bmjopen 2017-016740
  • Skira, M. M. (2015). Dynamic wage and employment effects of elder parent care. International Economic Review, 56(1), 63–93. https://doi.org/10.1111/iere.12095
  • Victor, C., Scambler, S., Bond, J. & Bowling, A. (2000). Being alone in later life: Loneliness, social isolation and living alone. Reviews in Clinical Gerontology, 10, 407–417. https://doi.org/10.1017/S0959259800104101
  • Vitaliano, P. P., Zhang, J. & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129, 946–972. DOI: 10.1037/00332909.129.6.946
  • Waring, E. M. & Chelune, G. J. (1983). Marital intimacy and self-disclosure. Journal of Clinical Psychology, 39(2), 183-190. http://dx.doi.org/10.1002/10974679(198303)39:2<183::AIDJCLP2270390206>3.0.CO;2-L
  • Waring, E. M., Patton, D., Neron, C. A. & Linker, W. (1986). Types of marital intimacy and prevalence of emotional illness. Canadian Journal of Psychiatry, 31(8), 720–725. DOI: 10.1177/070674378603100805
  • Weiss, R. S. (1973). Loneliness: The experience of emotional and social isolation. Cambridge, MA: The MIT Press.

Document Type

Publication order reference

Identifiers

YADDA identifier

bwmeta1.element.desklight-119260dd-9dc4-445c-a9cd-50e4d93a6001
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