QUALITY OF LIFE AMONGST CARE GIVERS FOR PATIENTS WITH PARKINSON’S DISEASE

• Authors: Cholewa Joanna , Rychły Anna , Rafalska Beata , Cholewa Jarosław
• Languages of publication: EN

Abstracts

Parkinson’s disease (PD) is a neurodegenerative disease. Due to a constantly growing rate of incidence and the lowering age of PD patients it is becoming a more serious social problem. The aim of this study is to assess the quality of life amongst care givers for people suffering from Parkinson's disease. The work includes research on the influence of physical rehabilitation of PD patients on the quality of life of their care givers. The research covered care givers (n=50) of PD patients diagnosed with third stage PD according to the Hoehn and Yahr classification. The diagnostics survey with a questionnaire addressed to care givers looking after PD patients was used. The questionnaire was created by the authors of this paper. The survey consisted of two parts, in which the first was to obtain basic information on the present status of the care giver, while the other was to verify life satisfaction level, using Jurczynski's Scale of Life Satisfaction. Statistical analysis showed significant differences in all analyzed statements between groups. Better effects were observed in the group participating in rehabilitation. Care for people suffering from PD affects the quality of life of caregivers. Participation in the process of rehabilitation of patients with PD improves the quality of life of caregivers.

Keywords

EN

Parkinson’s disease; quality of life; caregivers; life satisfaction

• Publisher: Politechnika Opolska. Wydział Wychowania Fizycznego i Fizjoterapii
• Journal: Journal of Physical Education & Health - Social Perspective
• Year: 2016
• Volume: 5
• Issue: 7
• Pages: 47-53

Dates

published

2016

Contributors

author

Cholewa Joanna

• The Jerzy Kukuczka Academy of Physical Education in Katowice, Department of Physiotherapy

author

Rychły Anna

• The Jerzy Kukuczka Academy of Physical Education in Katowice, Department of Physiotherapy

author

Rafalska Beata

• The Jerzy Kukuczka Academy of Physical Education in Katowice, Department of Physical Education

author

Cholewa Jarosław

• State Higher Vocational School in Raciborz

References

• 1. Argimon J.M., Limon E., Vila J., Cabezas C.(2005). Health-related quality of life of care-givers as a predictor of nursing-home placement of patients with dementia. Alzh Dis Assoc Disord, 19: 41-44.
• 2. Bacher-K.(2009): Self management of chronic disease. Alzheimer’s Disease. Springer; 67-70.
• 3. Baumgarten M.(1989): The heath of persons giving care to the demented elderly: a critical review of the literature. J Clin Epidemiol, 42:1137-1148.
• 4. Cash T.V., Ekouevi V.S., Kilbourn C., Lageman S.K.(2016): Pilot study of a mindfulness-based group intervention for individuals with Parkinson’s disease and their caregivers, Mindfulness, 7(2): 361-371.
• 5. Cholewa J., Gorzkowska A., Szepelawy M., Nawrocka A., Cholewa J.(2014): Influence of functional movement rehabilitation on quality of life in people with Parkinson's disease. J Phys Ther Sci, 26(9): 1329-31.
• 6. Compston A., Cole B.(2002): Multiple sclerosis. Lancet; 359: 1121-1131.
• 7. Critchley M.(1929): Arteriosclerotic parkinsonism. Brain, 52: 23-83.
• 8. Hugues A.J., Daniel S.E., Lees A.J.(2001): Improved accuracy of clinical diagnosis of lewy body Parkinson"s disease. Nerology, 57: 1497-1499.
• 9. Jellinger K.A.(2002): Vascular parkinsonism – neuropathological findings. Acta Neurol Scand, 105: 414-415.
• 10. Jenkinson C., Dummett S., Kelly L., Peters M., Dawson J., Morley D., Fitzpatrick R..(2012): The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer). Parkinsonism Relat Disord, 18(5): 483-7.
• 11. McCabe M.P., Roberts C., Firth L.(2008): Work and recreational changes among people with neurological illness and their caregivers. Disabil Rehabil, 30(8): 600-610.
• 12. Marras C., Lang A.(2003): Changing concepts in Parkinson disease. Neurology, 70: 1996-2003.
• 13. Morley D., Dummett S., Peters M., Kelly L., Hewitson P., Dawson J., Fitzpatrick R., Jenkinson C.(2012): Factors influencing quality of life in caregivers of people with Parkinson's disease and implications for clinical guidelines. Parkinsons Dis, 2012:190901. doi: 10.1155/2012/190901.
• 14. Muller T., Woitalla D.(2010): Quality of life, caregiver burden and insurance in patients with Parkinson’s disease in Germany, Eur J Neurol, 17(11): 1356-1359.
• 15. O’reilly F, Finnan F, Allwright A. The effects of caring for a suppose with Parkinson’s disease on social, psychological and physical well-being. Br J Gen Pract, 46(410): 507-12.
• 16. Rivera-Navarro J, Benito-Leon J, Pardo J. Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis. Multiple sclerosis, 15(11): 1347-1355.
• 17. Sibon I., Tison F.(2004): Vascular parkinsonism. Curr Opin Neurol. 17(1): 49-54.
• 18. Thomas P., Lalloue F., Preux P.M., Hazif-Thomas C., Pariel S., Inscale R., Belmin J., Clement J.P., Thomas P., Lalloue F., Preux P.M., Hazif-Thomas C., Pariel S., Inscale R., Belmin J., Clement J.P.(2006): Dementia patients caregivers quality of life; the PIXEL study. Int J Geriatr Psychiatry, 21: 50-56.
• 19. Vossius C., Nilsen O.B., Larsen J.(2009): Parkinson´s disease and nursing home placement: the economic impact of the need for care. Eur J Neurol, 16(2): 194-200.
• 20. Wolters E.Ch., Bosboom J.L.(2007): Parkinsonism. Parkinsonism and related disorders. VU University Press; Amsterdam: 143-58.
• 21. Zijlmans J.C., Daniel S.E., Hughes A.J.(2004): Clinicopathological investigation of vascular parkinsonism, including clinical criteria for diagnosis. Mov Disord, 19: 630-640.
• 22. www.who.int (22.05.2016)
• 23. http://www.practest.com.pl/swls-skala-satysfakcji-z-zycia (12.01.2016)