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Journal

2018 | Special Issue 2018 | 200-217

Article title

Carrying Out Research Among Persons with Disabilities and their Relatives – Selected Ethical Issues

Content

Title variants

Languages of publication

EN

Abstracts

EN
The paper tackles issues related to selected both ethical and practical aspects of conducting research among persons with disabilities and their relatives that constitute a vulnerable social group. The author analyzes its consequences in the research process, discusses the significance of the research problem undertaken both for the development of academic knowledge and for research participants, and analyzes the conditions for obtaining informed consent. Limits of sociological interview and researcher’s engagement are also discussed.

Publisher

Journal

Year

Pages

200-217

Physical description

Dates

published
2018-12-31

Contributors

  • Collegium Civitas, Warsaw, Poland

References

  • Becker H.S. (1967), Whose side are we on?, „Social Problems” Vol. 14
  • Ciuk S., Latusek-Jurczak D. (2012), Etyka w badaniach jakościowych [Ethics in qualitative research], (in:) Badania jakościowe. Podejścia i teorie. Tom I [Qualitative Research. Approaches and Theories. Volume I], (Ed.) Jemielniak D., Wydawnictwo Naukowe PWN, Warszawa
  • Chase S.E. (2005), Narrative Inquiry: Toward Theoretical and Methodological Maturity., (in:) The Sage Handbook of Qualitative Research. 3rd Edition, (Eds.) Denzin N.K., Lincoln Y.S., Sage Publications, Thousand Oaks–London–New Delhi
  • Creswell J.W. (2009), Qualitative Inquiry & Research Design. Choosing Among Five Approaches, Sage Publications, Thousand Oaks
  • Flick U. (2007), Designinh Qualitative Research, Sage Publications, Thousand Oaks–London–New Delhi–Los Angeles–Singapore–Washington
  • Liamputtong P. (2007), Researching the Vulnerable. A Guide to Sensitive Re-search Methods, Sage Publications, London–Thousand Oaks–New Delhi
  • Lofland J., Snow D.A., Anderson L., Lofland L.H. (2006), Analyzing Social Settings: A Guide to Qualitative Observation and Analysis, Wadsworth Thomson, Belmond CA.
  • Niedbalski J. (2009), Niepełnosprawność intelektualna w perspektywie ba-dań socjologicznych. Rozważania nad zastosowaniem metod jakościowych [Intellectual disability in the perspective of sociological research. Considerations on qualitative methods’ application], (in:) Metody, techniki i praktyka badań społecznych [Methods, techniques and practice of social research], (Eds.) Bąk A., Kubisz-Muła Ł., Wydawnictwo Akademii Techniczno-Humanistycznej, Bielsko-Biała
  • Sałkowska M. (2015), Matka Downa. Piętno. Znaczenia. Strategie [Down’s Mother. Stigma. Meanings. Strategies], Zakład Wydawniczy NOMOS, Kra-ków
  • Surmiak A. (2016), Wybrane problemy etyczne w naukowych badaniach na zlecenie. Refleksje etnografki [Some Ethical Issues in Contract Research. Ethnographer’s Reflections], „Przegląd Socjologii Jakościowej”, t. 12, nr 3, http://www.qualitativesociologyreview.org/PL/Volume35/PSJ_12_3_Surmiak.pdf
  • Thoits P.A. (2011), Resisiting the Stigma of Mental Illness, “Social Psychology Quarterly” Vol. 74, No. 6

Notes

EN
This article is a translated and modified version of the text that was published in the previous issue of “Zoon Politikon”. See: Marta Sałkowska, Wybrane etyczne aspekty realizacji badań wśród osób z niepełnosprawnościami i ich bliskich, "Zoon Politikon" (8) 2017, DOI: 10.4467/2543408XZOP.17.003.9267.

Document Type

Publication order reference

YADDA identifier

bwmeta1.element.desklight-c37b12cc-b2a8-4970-bff7-f3073e531d22
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