Rodziny wychowujące dziecko z niepełnosprawnością – czynniki społeczne, kulturowe oraz polityczne: rodziny żydowskie i arabskie mieszkające w Izraelu

• Authors: Dana Roth , Ivan Brown

Title variants

EN

Families raising a child with disability – Social and cultural and political considerations: Israeli Jewish and Arab Families

• Languages of publication: PL EN

Abstracts

PL

Rzeczywistość społeczna, polityczna i kulturowa wywiera wpływ na wszystkich członków społeczeństwa. Jednak rodzina wychowująca dziecko z niepełnosprawnością musi mierzyć się z dodatkowymi wyzwaniami. Natomiast rodzina z dzieckiem niepełnosprawnym, która należy do mniejszości, ma tych wyzwań jeszcze więcej. W prezentowanym badaniu porównano jakość życia rodzin wychowujących dziecko niepełnosprawne w społecznościach żydowskich i arabskich mieszkających w Izraelu. Kwestionariusz jakości życia rodziny, który poddaje procesowi operacjonalizacji jakość życia rodziny jako konstrukt obejmujący sześć wymiarów oceny w dziewięciu podstawowych dziedzinach życia rodziny, wypełnili główni opiekunowie dzieci niepełnosprawnych ze 158 rodzin żydowskich i 105 rodzin arabskich mieszkających w Izraelu. W wymiarze ogólnym izraelskie rodziny żydowskie zgłaszały wyższą jakość życia swoich rodzin niż rodziny arabskie. Mimo że osiem z dziewięciu dziedzin życia wskazanych w kwestionariuszu oceniono wysoko w wymiarze znaczenia, główne miary wyniku, czyli realizację i satysfakcję, oceniono niżej w przypadku prawie wszystkich dziedzin. Niektóre badane obszary życia przyczyniały się do ogólnych różnic w większym stopniu niż inne. Także wzorzec wyników wyglądał inaczej w przypadku rodzin żydowskich i arabskich. Status społeczny, kulturowy i polityczny rodziny powinien być brany pod uwagę przez decydentów oraz praktyków jako czynnik mogący mieć wpływ na rodzinę z niepełnosprawnym dzieckiem. Istnieje potrzeba prowadzenia dalszych badań w celu opracowania modeli do zastosowania w odpowiedzi na potrzeby mniejszości przy projektowaniu programów dla powszechnego systemu realizacji świadczeń.

Social, political, and cultural realities have an effect on all members of society. For family with a child with disability there are additional challenges. Being a minority family with a child with a disability adds to the challenges. This studycompares the family quality of life (FQOL) of families with a child with disability in Jewish and Arab communities in Israel. Main caregivers ofchildren with disabilitiesof 158 Jewish and 105 Arab Israeli responded to the Family Quality of Life Survey, which operationalizes FQOL as a construct of sixmeasurement dimensions in nine core family life domains. Overall, Jewish families in Israel reported higher FQOL than Arab families. Although eight of the nine domains were rated highly for Importance, the main outcome measures Attainment and Satisfaction were rated lower for almost all domains. Some domains contributed to overall differences more than others. The patterns also differed for the Jewish and Arab families. Social/cultural/political status of families are important for policy and practice professionals to consider as having possible impact on the family of a child with a disability. Further research is needed to develop application models for addressing the needs of minority populations in designing programs into the general service delivery system.

Keywords

PL

dzieci z niepełnosprawnością; rodziny o statusie mniejszościowym; jakość życia rodziny; czynniki społeczne, kulturowe, polityczne

EN

children with disability; families in minority status; family quality of life; social, cultural, political considerations

• Publisher: Akademia Pedagogiki Specjalnej im. Marii Grzegorzewskiej. Wydawnictwo APS
• Journal: Człowiek - Niepełnosprawność - Społeczeństwo
• Year: 2017
• Issue: 4(38)
• Pages: 5–21

Contributors

author

Dana Roth

• Research and Evaluation, Beit Issie Shapiro, 1 Beit Issie Shapiro Street, PO Box 29, Ra’anana, Israel 43100; tel. [phone]

author

Ivan Brown

• Center for Applied Disability Studies, Brock Universtity, St. Catharine’s, Ontarion, Canada

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Identifiers

DOI

10.5604/01.3001.0012.0325