Full-text resources of CEJSH and other databases are now available in the new Library of Science.
Visit https://bibliotekanauki.pl

PL EN


2017 | 48 | 239-249

Article title

Ego-Resiliency and Parental Satisfaction Among Parents of Children with Down Syndrome

Content

Title variants

Languages of publication

Abstracts

EN
Parents of children with Down syndrome face many challenges related to their children’s disability. They manage to raise their children primarily thanks to their internal resources, protective psychological traits and help from other people. The aim of this study was to investigate the level of ego-resiliency as an important personality trait in a group of mothers and fathers of children with Down syndrome. The relationship between ego-resiliency and parental satisfaction was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers). Our results show that there is no difference in the level of ego-resiliency between mothers and fathers of children with Down syndrome. Nevertheless, it is noticed that there is a difference in perceived stress, psychological well-being and some aspects of parental satisfaction between parents with high and low levels of ego-resiliency. These results give an interesting insight into the internal func- tioning of parents of children with Down syndrome.

Year

Volume

48

Pages

239-249

Physical description

Dates

published
2017

Contributors

References

  • Asendorpf, J.B., & van Aken, M.A.G. (1991). Correlates of the temporal consistency per- sonality patterns in childhood. Journal of Personality, 59, 689-703.
  • Badiee, D. (2016). Investigating the effectiveness of Acceptance and Commitment Therapy in resiliency and functioning of family with children suffering from mental retardation. The Caspian Sea Journal, 10 (1), Supplement 4, 313-319.
  • Będkowska-Heine, V. (2007). Wpływ przewlekłej choroby dziecka na funkcjonowanie w roli ojca [The impact of the child’s chronic condition on functioning in the role of father]. In: B. Cytowska, B. Winczura (eds.), Dziecko chore. Zagadnienia biopsychiczne i pedagogiczne [Ill child. Biopsychical and pedagogical questions] (pp. 53-78). Kraków: Oficyna Wydawnicza “Impuls”.
  • Block, J.L., Kremen, A.M. (1996). IQ and ego-resiliency: conceptual and empirical connec- tions and separateness. Journal of Personality and Social Psychology, 40 (2), pp. 349-361.
  • Cohen, S., Kamarck, T., Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, pp. 385-396.
  • Greenberg, J.S., Seltzer, M.M., Krauss M.W., Chou, R., Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74 (1), pp. 14-25. Heszen, I, Sęk, H. (2007). Psychologia zdrowia [Health Psychology]. Warszawa: Wydawnictwo Naukowe PWN.
  • Hills, P., Argyle, M. (2002). The Oxford Happiness Questionnaire: a compact scale for the measurement of psychological well-being. Personality and Individual Differences, 33, pp. 1073-1082.
  • Joosa, E., Berthelsen, D. (2006). Parenting a child with Down syndrome: A phenomeno- graphic study. Journal on Developmental Disabilities, 12 (1),pp. 45-58.
  • Juczyński, Z., Ogińska-Bulik, N. (2009). Narzędzia pomiaru stresu i radzenia sobie ze stresem [The measures of stress and coping with stress]. Warszawa: Pracownia Testów Psychologicznych.
  • Kaczmarek Ł., Sęk H., Ziarko M. (2011). Sprężystość psychiczna i zmienne pośredniczące w jej wpływie na zdrowie [Resilience and variables mediating its impact on health]. Przegląd Psychologiczny [The Review of Psychology], 54 (1),pp. 29-46.
  • King, G., Zwaigenbaum, L., Bates, A., Baxter, D.; Rosenbaum, P. (2011). P arent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and Down syndrome. Child: Care, Health and Development, 38 (6), pp. 817-828.
  • King, G., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., Bates, A. (2005). A qualita- tive investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health & Development, 32 (3),pp. 353-369.
  • Kołodziej, A., Przybyła-Basista, H. (2013). Oksfordzki Kwestionariusz Szczęścia-polska adaptacja narzędzia do badania dobrostanu: wyniki wstępne [Oxford Happiness Ques- tionnaire-Polish adaptation of well-being measure: initial results]. Ist International Conference on Positive Psychology in Poland (poster). Sopot: SWPS Wydział Zamie- jscowy (unpublished paper).
  • Kołodziej, A., Przybyła-Basista, H. (2012). Rola resiliency w pokonywaniu kryzysu rozwodowego: analiza teoretyczna i sposoby pomiaru [The role of resiliency in overcoming divorce crisis: theoretical analysis and techniques of measurement]. Ist International Interdisciplinary Conference: Health and Mental Resilience, Krakow, 20-21 October, 2012, Institute of Applied Psychology, Jagiellonian University (polska adaptacja
  • Kózka, A., Przybyła-Basista, H. (2016). The relationships between perceived stress and psychological well-being among mothers and fathers of children with Down syndrome. The New Educational Review, 44 (2), pp. 285-294.
  • Kózka, A., Przybyła-Basista, H. (2017). The impact of perceived stress, individual and relational resources on psychological well-being in parents of children with Down syndrome. Health Psychology Report (in print).
  • Masten, A., Powell, J. (2003). A resiliency framework for research, policy and practice. In: S. Luthar (ed.) Resiliency and vulnerability: Adaptation in the context of childhood
  • adversity (pp. 1-29). Cambridge University Press: Cambridge.
  • Ogelman, H.G., Erol, A. (2015). Examination of the predicting effect of the resiliency levels of parents on the resiliency levels of preschool children. Procedia-Social and Behavioral Sciences, 186, pp. 4 61-466.
  • Ong, A., Bergeman, C., Bisconti, T., Wallace, K. (2006). Psychological resilience, positive emotions and successful adaptation in later life. Journal of Personality and Social Psy- chology, 91, 730-749.
  • Przybyła-Basista, H., Kózka, A. (2016). Doświadczenie rodzicielstwa przez matki i ojców dzieci z zespołem Downa [Parenthood of mothers and fathers of children with Down syndrome]. In: W. Otrębski, K. Mariańczyk (eds.) Przepis na rehabilitację. Dzieci i młodzież z niepełnosprawnością [Recipe for rehabilitation. Children and youth with
  • disability] (pp. 201-223). Gdańsk: Harmonia Universalis.
  • Roach, M., Orsmond, G., Barratt, M. (1999). Mothers and fathers of children with Down syndrome: parental stress and involvement in childcare. American Journal on Mental Retardation, 104 (5), 422-436.
  • Sadowska, L., Gruna-Ożarowska, A., Mysłek-Prucnal, M. (2007). Problemy psychospołec- zne i medyczne dzieci z zespołem Downa w procesie wczesnej interwencji w świetle piśmiennictwa i własnych badań naukowych [Psychosocial and medical problems of children with Down syndrome in the process of early intervention on the base of literature and the authors’ own studies]. In: B. Cytowska, B. Winczura (eds.), Dziecko chore. Zagadnienia biopsychiczne i pedagogiczne [Ill child. Biopsychical and pedagogical
  • questions] (pp. 129-170). Kraków: Oficyna Wydawnicza „Impuls”.
  • Sęk H. (2008). Udział emocji pozytywnych w osiąganiu zdrowia [The participation of pos- itive emotions in gaining health]. In: I. Heszen, J. Życińska (eds.). Psychologia zdrowia: w poszukiwaniu pozytywnych inspiracji [Health psychology: in search of positive inspirations] (pp. 73-88). Warszawa: Wydawnictwo SWPS Academica.
  • Wolska, D. (2013). Wychowanie dzieci z zespołem Downa [The upbringing of children with Down syndrome]. In: J. Koral (ed.), Zespół Downa w XXI wieku [Down syndrome in the twenty-first century] (pp. 108-135) Warszawa: Stowarzyszenie Rodzin i Opiekunów Osób z Zespołem Downa „Bardziej Kochani”.

Document Type

Publication order reference

Identifiers

Biblioteka Nauki
1998241

YADDA identifier

bwmeta1.element.ojs-doi-10_15804_tner_2017_48_2_19
JavaScript is turned off in your web browser. Turn it on to take full advantage of this site, then refresh the page.