Full-text resources of CEJSH and other databases are now available in the new Library of Science.
Visit https://bibliotekanauki.pl

PL EN


2023 | 74 | 153-165

Article title

Forms of Occupational Work for Parents of Children on the Autism Spectrum during the Pandemic: Selected Aspects of Functioning and Children’s Participation in Therapy

Content

Title variants

Languages of publication

Abstracts

EN
This study, conducted during the pandemic, examined if the occupational situation of parents of children with ASD influenced their parenting role and their children’s participation in therapy. We studied three groups of parents in Poland (n=137): non-employed, stationary workers, and remote workers. We tried to establish how parents assessed their competence in implementing therapy recommendations, their child’s functioning and the need for support using the Parental Stress Scale (PSS) and a questionnaire. Results showed that employment status did not affect perceived parental stress levels. The fulfilment of therapy recommendations was similar in the three groups. However, stationary workers felt more competent doing so. The study groups differed in their assessment of difficulties and expected support.

Year

Volume

74

Pages

153-165

Physical description

Dates

published
2023

Contributors

author
  • Warsaw University
  • Psychological and Pedagogical Counseling Center, Warsaw
  • The Children’s Memorial Health Institute, Warsaw
  • East Tennessee State University, Johnson City, Tennesse, USA

References

  • Baker, D. L., & Drapela, L. A. (2010). Mostly the mother: Concentration of adverse employment effects on mothers of children with autism. The Social Science Journal, 47(3), 578–592.
  • Baweja, R., Brown, S. L., Edwards, E. M., & Murray, M. J. (2021). COVID-19 pandemic and impact on patients with autism spectrum disorder. Journal of Autism Developmental Disorders, 52(1), 473–482.
  • Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12(3), 463–472.
  • Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders, 38(8), 1509–1517.
  • Eshraghi, A. A, Li, C., Alessandri, M., Messinger, D. S., Eshraghi, S. R., Mittal, R., & Armstrong, F. D. (2020). COVID-19: overcoming the challenges faced by individuals with autism and their families. Lancet Psychiatry, 7(6), 481–483.
  • Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.
  • Feng, Y., Zhou, X., Qin, X., Cai, G., Lin, Y., Pang, Y., Chen, B., Deng, T., & Zhang, L. (2022). Parental self-efficacy and family quality of life in parents of children with autism spectrum disorder in China: the possible mediating role of social support. Journal of Pediatric Nursing, 63, 159–167.
  • Fletcher, P. C., Markoulakis, R., & Bryden, P. J. (2012). The costs of caring for a child with an autism spectrum disorder. Issues in Comprehensive Pediatric Nursing, 35(1), 45–69.
  • Forrest, D. L., Kroeger, R. A., & Stroope, S. (2020). Autism Spectrum Disorder Symptoms and Bullying Victimization Among Children with Autism in the United States. Journal of Autism and Developmental Disorders, 50(2), 560–571.
  • Frankova, H. (2020). The impact of COVID-19 on people with autism, learning disabilities and mental health conditions. Nursing and Residential Care, 22(6), 1–3.
  • Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161(4), 343–349.
  • Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56(3), 631–642.
  • Huang, S. J., Sun, T., Zhu, Y. N., Song, S. S., Zhang, J. J., Huang, L. J., Chen, Q., Peng, G. Y., Zhao, D. M., Yu, H., & Jing, J. (2021). Impact of the COVID-19 pandemic on children with ASD and their families: An online survey in China. Psychology Research Behavior Management, 14, 289–297.
  • Järbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. Journal of Autism and Developmental Disorders, 33(4), 395–402.
  • Jenkinson, R., Milne, E., & Thompson, A. (2020). The relationship between intolerance of uncertainty and anxiety in autism: A systematic literature review and meta-analysis. Autism, 4(8), 1933–1944.
  • Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States. Pediatrics, 122(6), 1149–1158.
  • Kurzrok, J., McBride, E., & Grossman, R. B. (2021). Autism-specific parenting self-efficacy: an examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden. Autism, 25(5), 1395–1408.
  • Latzer, I. T., Leitner, Y., & Karnieli-Miller, O. (2021). Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. Autism, 25(4), 1047–1059.
  • Lessenberry, B. M., & Rehfeldt, R. A. (2004). Evaluating stress levels of parents of children with disabilities. Council for Exceptional Children, 70(2), 231–244.
  • Louie, A. D., Cromer, L. D., & Berry, J. O. (2017). Assessing Parenting Stress: Review of the Use and Interpretation of the Parental Stress Scale. The Family Journal, 25(4), 359–367.
  • Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112(6), 401–417.
  • Luong, J., Yoder, M. K., & Canham, D. (2009). Southeast Asian parents raising a child with autism: A qualitative investigation of coping styles. Journal of School Nursing, 25(3), 222–229.
  • Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 119(5), 1040–1046.
  • Mumbardó-Adam, C., Barnet-López, S., & Balboni, G. (2021). How have youth with autism spectrum disorder managed quarantine derived from COVID-19 pandemic? An approach to families perspectives. Research in Developmental Disabilities, 110, 103860.
  • Sen, E., & Yurtsever, S. (2007). Difficulties experienced by families with disabled children. Journal of School Nursing, 12(4), 238–252.
  • Sinha, D., Verma, N., & Hershe, D. (2016). A Comparative Study of Parenting Styles, Parental Stress and Resilience among Parents of Children Having Autism Spectrum Disorder, Parents of Children Having Specific Learning Disorder and Parents of Children Not Diagnosed with Any Psychiatric Disorder. Annals of International Medical and Dental Research, 2(4), 106–111.
  • Stankovic, M., Jelena, S., Stankovic, M., Shih, A., Stojanovic, A., & Stankovic, S. (2020). The Serbian Experience of Challenges of Parenting Children with Autism Spectrum Disorders during the COVID-19 Pandemic and the State of Emergency with the Police Lockdown. European Child & Adolescent Psychiatry, 31(4), 693–698.
  • Stein, L., Cermak, S., & Jozkowski, A. (2011). Occupational Patterns of Parents of Children with Autism Spectrum Disorder: Revisiting Matuska and Christiansen’s Model of Lifestyle Balance. Journal of Occupational Science, 18(2), 115–130.
  • Turk, M. A., Landes, S. D., Formica, M. K., & Goss, K. D. (2020). Intellectual and Developmental Disability and COVID-19 Case-Fatality Trends: TriNetX Analysis. Disability and Health Journal, 13(3), 100942.
  • Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1075–1083.

Document Type

Publication order reference

Identifiers

Biblioteka Nauki
24964667

YADDA identifier

bwmeta1.element.ojs-doi-10_15804_tner_23_74_4_11
JavaScript is turned off in your web browser. Turn it on to take full advantage of this site, then refresh the page.