How to support working family carers? British initiatives as a practical means to reduce loneliness in everyday life of family caregivers in Poland

• Authors: Anna Maria Janowicz , Martyna Klimek , Piotr Krakowiak

Title variants

PL

Jak wspierać pracujących opiekunów rodzinnych? Brytyjskie inicjatywy jako praktyczne sposoby na zmniejszenie samotności w codziennym życiu opiekunów rodzinnych w Polsce

Abstracts

EN

Among various publications regarding end-of-life care in Poland there is one piece of important research that shows a difficult situation for family caregivers in end-of-life care in Poland, who often lack recognition and support and face a lonely struggle, especially in home care settings (Janowicz, 2019a). The Polish Government published documents in support of family caregivers for the first time in 2019, recognizing respite care and allocating money to some of them. Poland has successfully implemented British standards of hospice and palliative care, making it the best in Central-Eastern Europe; the same could be done in supporting carers in family settings (Krakowiak, 2020a). We have already learnt and benefited from the experience of the British organisation Carers UK, who have been operating successfully for more than 50 years and working towards inclusion of formal and informal care (Klimek, 2020). But how can we move forward in helping those who face loneliness and feelings of helplessness as family carers? We can learn from those who have already developed tools and created strategies supporting family caregivers. Exploring the educational strategies of supporting organizations from the UK, will help to point towards possible solutions to this social and educational challenge in Poland, helping to reduce the loneliness of carers in the home care settings. Most families still feel isolated, while most of our local communities do not support those who care, often for many months and years. Social educators and social workers need to tackle the questions of loneliness and isolation that many family caregivers face. First steps have been made and first publications issued, but more robust strategies and practical solutions are needed. Newest facts and figures from Carers UK documents and Best Practice In Supporting Carers by Carer Positive Employer in Scotland (2020) will help to show existing strategies used for and by employers. Among many existing initiatives this one regarding combining care and work could be very important to recognise the needs of working carers, sharing their job with the duty of constant care at home. Action is urgently needed in Poland, where many people do a full-time job alongside caring at home. Recognition of family carers’ needs by their workplace, support from employers and flexibility in working hours is still a rare exception, and it should be changed. The Covid-19 pandemic has fully exposed the problems of carers of dependent people around the world and also in Poland, especially difficult for those who combine care with work.

Keywords

EN

Carers UK; Emloyers for Carers; end-of-life care; home care; family carer; loneliness; isolation; inclusion; employers; (juggling) sharing work and care; respite care; Covid-19

• Publisher: Uniwersytet Opolski. Redakcja Wydawnictw Wydziału Teologicznego
• Journal: Family Forum
• Year: 2021
• Volume: 11
• Pages: 129-149

Dates

published

2021

Contributors

author

Anna Maria Janowicz

• Wyższa Szkoła Bankowa w Gdańsku, Wydział Finansów i Zarządzania
• Fundacja Hospicyjna, Gdańsk

author

Martyna Klimek

• Fundacja Hospicyjna, Gdańsk

author

Piotr Krakowiak

• Uniwersytet Mikołaja Kopernika w Toruniu, Wydział Nauk Pedagogicznych

• https://orcid.org/0000000205004954

References

• Aldridge, J. (2017) ‘Where are we now? Twenty-five years of research, policy and practice on young carers’, Critical Social Policy, 38(1), pp. 155–165. doi: 10.1177/0261018317724525.
• Augustyn, M. (ed.) (2010) Opieka długoterminowa w Polsce. Opis, diagnoza, rekomendacje. Warszawa: wydruk staraniem i ze środków Klubu Parlamentarnego Platformy Obywatelskiej RP.
• Bakalarczyk, R. (2020a) Godzenie pracy zawodowej z opieką nad osobami zależnymi wyzwaniem dla dialogu społecznego i polityki publicznej różnych szczebli, Warszawa: Komitet Dialogu Społecznego Krajowej Izby Gospodarczej [Online]. Available at: https://dialogkig.pl/wp-content/uploads/2020/11/RAPORT__Godzenie-pracy-zawodowej-z-opieka-nad-osobami-zaleznymi__2020r.pdf (Accessed: 20.02.2021).
• Bakalarczyk, R. (2020b) ‘Wyzwania dla polityki senioralnej w obliczu pandemii COVID-19 w Polsce – uwarunkowania, nowe problemy i sugerowane kierunki mierzenia się z nimi’, in: K. Stępniak (ed.) Państwo i Prawo w czasach Covid-19, Warszawa: Wydawnictwo Think & Make, pp. 262–285 [Online]. Available at: https://think-make.pl/wp-content/uploads/2020/07/Panstwo-i-prawo-w-czasach-COVID-19_ONLINE.pdf (Accessed: 10.10.2020).
• Bielska I., et al. (2020) Bezpieczeństwo zdrowotne w opiece długoterminowej w kontekście pandemii COVID-19, Open Eyes Economy Summit: Alert Zdrowotny 3 [Online]. Available at: https://oees.pl/alerty-eksperckie/ (Accessed: 19.02.2021).
• Birtha, M. and Holm, K. (2017) Who cares? Study on the challenges and needs of family carers in Europe, Brussels, pp. 8–36 [Online]. Available at: http://www.coface-eu.org/wp-content/uploads/2017/11/COFACE-Families-Europe_Study-Family-Carers.pdf (Accessed: 10.10.2020).
• Carer Positive Employer in Scotland [Online]. Available at: www.carerpositive.org (Accessed: 27.09.2020).
• Carer Positive Employer in Scotland. (2020) Best practice in supporting carers [Online]. Available at: http://www.carerpositive.org/files/2514/7687/3088/Carer_Positive_Best_Practice_Booklet_WEB.pdf (Accessed: 22.09.2020).
• Carers Advisory Group. (2020) Carers Advisory Group submission to the ASC Sector COVID19 Taskforce: How can we prepare and support carers better? [Online]. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/919158/2_Carers_Advisory_Group_report_accessible.pdf (Accessed: 19.02.2021).
• Carers UK [Online]. Available at: www.carersuk.org (Accessed: 27.09.2020).
• Carers UK. (2012) Sandwich Caring. Combining childcare with caring for older or disabled relatives [Online]. Available at: www.carersuk.org/for-professionals/policy/policy-library/sandwich-caring (Accessed: 26.09.2020).
• Carers UK. (2015) Unpaid carers save the UK £132 billion a year – the cost of a second NHS [Online]. Available at: www.carersuk.org/news-and-campaigns/news/unpaid-carers-save-the-uk-132-billion-a-year-the-cost-of-a-second-nhs (Accessed: 15.09.2020).
• Carers UK. (2019a) Facts about carers, pp. 2–4 [Online]. Available at: www.carersuk.org/for-professionals/policy/policy-library/facts-about-carers-2019 (Accessed: 14.01.2020).
• Carers UK. (2019b) Juggling work and unpaid care. A growing issue [Online]. Available at: www.carersuk.org/images/News_and_campaigns/Juggling_work_and_unpaid_care_report_final_0119_WEB.pdf (Accessed: 25.09.2020).
• Carers UK. (2019c) Research: More than 600 people quit work to look after older and disabled relatives every day [Online]. Available at: www.carersuk.org/news-and-campaigns/news/research-more-than-600-people-quit-work-to-look-after-older-and-disabled-relatives-every-day (Accessed: 23.09.2020).
• Carers UK, Employers for Carers. (2015) Caring and isolation in the workplace. Impact report and recommendations [Online]. Available at: www.employersforcarers.org/resources/research/item/987-caring-and-isolation-in-the-workplace (Accessed: 15.01.2020).
• Department of Health & Social Care. (2018) Carers Action Plan 2018 – 2020. Supporting carers today [Online]. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/713781/carers-action-plan-2018-2020.pdf (Accessed: 21.09.2020).
• Employers for Carers [Online]. Available at: www.employersforcarers.org (Accessed: 24.09.2020).
• Forum Odpowiedzialnego Biznesu. (2020) Odwaga i Równowaga. Czyli work-life balance po polsku, Warszawa [Online]. Available at: www.odpowiedzialnybiznes.pl/wp-content/uploads/2020/05/FOB_Odwaga-i-rownowaga.pdf (Accessed: 27.09.2020).
• Forum Odpowiedzialnego Biznesu [Online]. Available at: www.odpowiedzialnybiznes.pl (Accessed: 27.09.2020).
• Fundacja Hospicyjna [Online]. Available at: www.fundacjahospicyjna.pl (Accessed: 26.09.2020).
• Główny Urząd Statystyczny. (2018) Informacja o sytuacji osób starszych na podstawie badań Głównego Urzędu Statystycznego, Warszawa [Online]. Available at: https://stat.gov.pl/download/gfx/portalinformacyjny/pl/defaultaktualnosci/6002/1/2/1/informacja_o_sytuacji_osob_starszych_w_2017.pdf (Accessed: 19.02.2021).
• HM Government, Carers UK, Employers for Carers. (2013) Supporting Working Carers. The Benefits to Families, Business and the Economy [Online]. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/232303/Supporting_Working_Carers_Final_Report__accessible_.pdf (Accessed: 15.09.2020).
• House of Commons. (2018) Employment support for carers [Online]. Available at: https://publications.parliament.uk/pa/cm201719/cmselect/cmworpen/581/581.pdf (Accessed: 15.09.2020).
• Janowicz, A. (2019a) Opiekunowie rodzinni. Wyzwania i możliwości wsparcia. Warszawa: CeDeWu.
• Janowicz, A. (2019b) ‘Praca czy opieka?’, Hospicjum to też życie, (60)4, Gdańsk, pp. 11–12 [Online]. Available at: https://www.fundacjahospicyjna.pl/images/stories/kwartalnik/httz_2019_4net.pdf (Accessed: 27.09.2020).
• Janowicz, A. (2020) ‘Przykłady wyzwań i istniejących rozwiązań z zakresu work-life balance w kontekście opieki nad dorosłymi osobami zależnymi’, in: Odwaga i Równowaga. Czyli work-life balance po polsku. Warszawa: Forum Odpowiedzialnego Biznesu, pp. 90–95 Available at: http://odpowiedzialnybiznes.pl/wp-content/uploads/2020/05/FOB_Odwaga-i-rownowaga.pdf (Accessed: 27.09.2020).
• Klimek, M. (2020) ‘Origin and development of the family carers’ movement in the United Kingdom in the 20th century’, Palliative Medicine in Practice, 14, 1, pp. 1–9. doi: 10.5603/PMPI.2020.0005.
• Kotowska I.E., et al. (2010) Second European Quality of Life Survey. Family life and work, Luxembourg: Office for Official Publications of the European Communities. Available at: https://www.eurofound.europa.eu/publications/report/2010/quality-of-life-social-policies/second-european-quality-of-life-survey-family-life-and-work (Accessed: 22 February 2021).
• Kotowska I.E. and Wóycicka I. (eds.) (2008) Sprawowanie opieki oraz inne uwarunkowania podnoszenia aktywności zawodowej osób w starszym wieku produkcyjnym. Raport z badań. Warszawa: Ministerstwo Pracy i Polityki Społecznej [Online]. Available at: https://www.rownosc.info/media/uploads/sprawowanie_opieki.pdf (Accessed: 29.10.2020).
• Krakowiak, P. (2020a) ‘The Loneliness of Home Care Family Caregivers in Poland. Inspirations from Carers UK regarding Social Education for their Inclusion and Support’, Paedagogia Christiana, 1/45, pp. 185–200. doi: http://dx.doi.org/10.12775/PCh.2020.012.
• Krakowiak, P. (2020b) ‘Gaps in end-of-life care and lack of support for family carers in Poland and Central Eastern Europe’, Palliative Care & Social Practice, Vol. 14, pp. 1–10. doi: https://doi.org/10.1177/2632352420958001.
• Małkowska, M. (2019) ‘Droga Opiekunów Rodzinnych do równowagi’, Hospicjum to też życie, (60)4, Gdańsk, p. 9 [Online]. Available at: https://www.fundacjahospicyjna.pl/images/stories/kwartalnik/httz_2019_4net.pdf (Accessed: 14.10.2020).
• Mikołajewska, E. (2011) ‘Kierunki wsparcia opiekunów pacjentów po przebytym udarze mózgu w opiece domowej’, Udar Mózgu 13(1–2), pp. 14–15 [Online]. Available at: https://journals.viamedica.pl/um/article/view/33675 (Accessed: 24.10.2020).
• National Health Service. Who is considered a carer? [Online]. Available at: www.england.nhs.uk/commissioning/comm-carers/carers/ (Accessed: 24.09.2020).
• Nowosielska P. (2020) Opiekunowie sami potrzebują pomocy, COVID-19 obnażył problemy zamiatane pod dywan, Dziennik Gazeta Prawna [Online]. Available at: https://praca.gazetaprawna.pl/artykuly/1493307,opiekunowie-seniorzy-ludzie-starsi-koronawirus-pomoc-specjalny-zasilek-opiekunczy.html (Accessed: 20.02.2021).
• Perek-Białas, J. and Stypińska, J. (2010) ‘Łączenie pracy i opieki nad osobą starszą – wpływ na jakość życia opiekuna’, in Kałuża, D. and Szukalski, P. (eds.), Jakość życia seniorów w XXI wieku. Ku aktywności, Łódź: Uniwersytet Łódzki, pp. 136–148.
• Portal Opiekunów Rodzinnych [Online]. Available at: www.opiekunrodzinny.pl (Accessed: 24.09.2020)
• Roper, J. (2020) ‘How Covid-19 shone a spotlight on working carers’, Poeople Management [Online]. Available at: https://www.peoplemanagement.co.uk/long-reads/articles/how-covid-19-shone-spotlight-working-carers (Accessed: 20.02.2021).
• UK Parliament. (2020) Written evidence submitted by Carers (SCF0106) [Online]. Available at: https://committees.parliament.uk/writtenevidence/9580/pdf/ (Accessed: 20.02.2021).
• Urząd Miejski w Gdańsku. (2019) Jak zatrzymać w firmie pracowników – opiekunów rodzinnych?, Referat Prasowy Urzędu Miejskiego w Gdańsku [Online]. Available at: https://media.gdansk.pl/konferencje-prasowe/466137/jak-zatrzymac-w-firmie-pracownikow-opiekunow-rodzinnych-konferencja-pr (Accessed: 19.02.2021).
• World Health Organization. (2017) Evidence profile: caregiver support [Online]. Available at: https://www.who.int/ageing/health-systems/icope/evidence-centre/ICOPE-evidence-profile-caregiver.pdf?ua=1 (Accessed: 02.10.2020).

Identifiers

DOI

10.25167/FF/3666

Biblioteka Nauki

2041935