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1

Problems of Postgraduate Education in the Sphere of Palliative and Hospice Care

100%

Wolf A.

Labor et Educatio

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2015

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issue 3

173-180

EN

The article presents the views on the problems of post-graduate education in the sphere of palliative and hospice care in Ukraine. The need to modernize and adjust training programs according to modern international approaches is underlined.

2

Czy wartość życia wzrasta wobec bliskiej śmierci?

63%

GALEWICZ W.

Roczniki Filozoficzne

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2017

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vol. 65

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issue 4

5-22

PL

Przemysł farmaceutyczny oferuje coraz to nowe leki, które mają przedłużać życie osób cierpiących na nieuleczalne choroby. Innowacyjne terapie są często w jakimś stopniu skuteczniejsze, ale też (w co najmniej takim samym stopniu) droższe. Upoważnieni decydenci reprezentujący społeczeństwo muszą zatem rozstrzygać, które z nich będą finansowane ze środków publicznych. Jednym z głównych kryteriów, na których podstawie podejmuje się takie decyzje, jest stosunek dodatkowych kosztów, związanych z nową terapią, do czerpanych z niej dodatkowych korzyści. Dodatkowe korzyści, wynikające z nowych leków dla osób śmiertelnie chorych, wydają się jednak często niezbyt wielkie w porównaniu do ich zawrotnych dodatkowych kosztów. Rodzi się zatem wątpliwość, czy refundacja tych leków, do której opinia społeczna skądinąd na ogół się skłania, daje się pogodzić z równie powszechnie akceptowaną zasadą ekonomicznej efektywności. Pewną próbą uzgodnienia tych postaw byłoby przyjęcie, że z pozoru niewielkie korzyści, przysparzane osobom zbliżającym się do śmierci — jak marginalne zwiększenie długości ich życia lub nieznaczne podniesienie jego jakości — w rzeczywistości mają większą wartość, ponieważ życie tych osób trzeba cenić wyżej. W przedstawianym artykule zastanawiam się nad tym, czy ta koncepcja jest do utrzymania — czy wartość życia wzrasta wobec bliskiej śmierci.

EN

The costs of life-extending care at the end of life are often disproportionately high in relation to the benefits it brings to the patients. Thus, the unrestricted principle of cost-effectiveness as a rule of rational healthcare allocation would require us to limit publicly funded life-prolonging treatments for patients nearing the end of life. From a societal perspective, however, this limitation would be often callous and inhuman. There are three possible ways to reconcile these two attitudes. First, we could restrict the principle of cost-effectiveness by questioning its validity in the field of end-of-life care. Second, we could raise the acceptable upper cost-effectiveness threshold for end-of-life treatments. Thirdly, it is also possible to maintain that the seemingly rather poor effects of end-of-life treatments are actually much better, because the value of life increases as death draws near. In this paper, I discuss the plausiblity of this last solution.

3

How to support working family carers? British initiatives as a practical means to reduce loneliness in everyday life of family caregivers in Poland

51%

Janowicz A. M., Klimek M., Krakowiak P.

Family Forum

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2021

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vol. 11

129-149

EN

Among various publications regarding end-of-life care in Poland there is one piece of important research that shows a difficult situation for family caregivers in end-of-life care in Poland, who often lack recognition and support and face a lonely struggle, especially in home care settings (Janowicz, 2019a). The Polish Government published documents in support of family caregivers for the first time in 2019, recognizing respite care and allocating money to some of them. Poland has successfully implemented British standards of hospice and palliative care, making it the best in Central-Eastern Europe; the same could be done in supporting carers in family settings (Krakowiak, 2020a). We have already learnt and benefited from the experience of the British organisation Carers UK, who have been operating successfully for more than 50 years and working towards inclusion of formal and informal care (Klimek, 2020). But how can we move forward in helping those who face loneliness and feelings of helplessness as family carers? We can learn from those who have already developed tools and created strategies supporting family caregivers. Exploring the educational strategies of supporting organizations from the UK, will help to point towards possible solutions to this social and educational challenge in Poland, helping to reduce the loneliness of carers in the home care settings. Most families still feel isolated, while most of our local communities do not support those who care, often for many months and years. Social educators and social workers need to tackle the questions of loneliness and isolation that many family caregivers face. First steps have been made and first publications issued, but more robust strategies and practical solutions are needed. Newest facts and figures from Carers UK documents and Best Practice In Supporting Carers by Carer Positive Employer in Scotland (2020) will help to show existing strategies used for and by employers. Among many existing initiatives this one regarding combining care and work could be very important to recognise the needs of working carers, sharing their job with the duty of constant care at home. Action is urgently needed in Poland, where many people do a full-time job alongside caring at home. Recognition of family carers’ needs by their workplace, support from employers and flexibility in working hours is still a rare exception, and it should be changed. The Covid-19 pandemic has fully exposed the problems of carers of dependent people around the world and also in Poland, especially difficult for those who combine care with work.

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1 Wolf A.

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Problems of Postgraduate Education in the Sphere of Palliative and Hospice Care

Czy wartość życia wzrasta wobec bliskiej śmierci?

How to support working family carers? British initiatives as a practical means to reduce loneliness in everyday life of family caregivers in Poland