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When motherhood is not enough. Challenges of children with disabilities’ personal assistants.

100%

Onitiu A., Stere D.

Academicus. International Scientific Journal

2023

vol. 14

issue 28

59-74

The present research aims to investigate the perception of the parent - personal assistant on his/her profession, but also on his/her personal life, with the aim of identifying the challenges, but also the opportunities that this status brings in the lives of the parents. Starting from the purpose of our research, two objectives were pursued, namely to identify the challenges and opportunities of the personal assistant position and to analyze the parents’ perception regarding the decision to become a personal assistant. The study was designed as a qualitative research approach, the interview method was considered the most appropriate to serve the research objectives. The research took place in a day center that offers recovery services to children with disabilities in Timișoara (Romania), the subjects of our research being exclusively mothers. The research revealed that the decision to become a personal assistant for the child with disabilities is dictated by the affection for the child and the sense of duty towards him as a parent, despite the financial well-being previously ensured by a well-paid job. What impacts the respondents’ lives is not the new job, but the confrontation with the child’s disability. If in some cases the disability was accepted relatively easily, the parents offering each other support, the level of cohesion increasing and benefiting of help from the extended family, we also identified a situation where the family fell apart. The only need claimed by the parents is that of counselling, the respondents complainings were on the difficulties they have to manage with regard to stress, fatigue and lack of free time.

Wsparcie osób z niepełnosprawnością w działalności Rzecznika Praw Obywatelskich – aktualne problemy

72%

Krawiec G.

Studia Prawnicze: rozprawy i materiały

2020

issue 1(26)

21-32

The article presents some selected cases, dealt with in the Ombudsman’s Office, regarding persons with disabilities. Selected cases were discussed, which have recently been the subject of explanatory proceedings conducted by the Polish Ombudsman. Their analysis leads to the conclusion that there are more and more cases of a general nature – those that do not concern only a single person (s), but are relevant to the entire group of people with disabilities. These are often matters that are very important for this group – for they relate to, for example, disability certificates or everyday help (e.g. assistantship). However, it is important that, in addition to making speeches to decision-makers, the Ombudsman publicizes these matters properly so that they reach the public.

W artykule przedstawione zostały niektóre sprawy załatwiane w Biurze Rzecznika Praw Obywatelskich, a dotyczące osób z niepełnosprawnością. Omówiono wybrane sprawy, które w ostatnim czasie były przedmiotem postępowania wyjaśniającego prowadzonego przez polskiego ombudsmana. Ich analiza prowadzi do wniosku, że jest coraz więcej spraw o charakterze generalnym – takich, które nie dotyczą tylko i wyłącznie pojedynczej osoby (pojedynczych osób), a mają znaczenie dla całej grupy osób z niepełnosprawnościami. Są to często dla tej grupy sprawy bardzo ważne – dotyczą np. orzekania o niepełnosprawności czy też codziennej pomocy (asystentura). Ważne jest jednak, by obok wystąpień do podmiotów decyzyjnych Rzecznik odpowiednio nagłaśniał te sprawy, tak by dotarły do opinii publicznej.

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1 Academicus. International Scientific Journal

1 Studia Prawnicze: rozprawy i materiały

1 Krawiec G.

1 Onitiu A.

1 Stere D.

1 2023

1 2020

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When motherhood is not enough. Challenges of children with disabilities’ personal assistants.

Wsparcie osób z niepełnosprawnością w działalności Rzecznika Praw Obywatelskich – aktualne problemy