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Płód/ dziecko z zespołem wad letalnych: od diagnozy do końca życia. Doświadczenia personelu medycznego oraz rodziców w ramach perinatalnej opieki paliatywnej

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Gruca-Stryjak K., Łuczak-Wawrzyniak J., Borkowska-Kłos M.

Człowiek i Społeczeństwo

2024

vol. 57

97-121

Epidemiological studies indicate a significant risk of congenital malformations in about 2–3% of pregnancies, rising to 20% for perinatal deaths associated with polyposis. Approximately 15% of all congenital anomalies have a genetic background, some of which have serious clinical consequences. Modern prenatal diagnostic methods allow increasingly precise examination of the fetus, including ultrasound, biochemical tests, and analysis of extracellular DNA in the mother’s blood. This paper presents the experiences of medical staff and parents in the care of fetuses with adverse prenatal diagnoses, focusing on the provision of perinatal palliative care. A retrospective analysis of clinical cases and a questionnaire survey of medical staff were conducted at the Gynecological-Obstetric Clinical Hospital of the Medical University of Poznan. The results show that approximately 7–9% of patients with an unfavorable prenatal diagnosis receive perinatal palliative care. The survey of medical staff shows the different experiences of palliative care in childbirth and the importance of the birth plan for doctors and midwives. These findings may help to improve the quality of medical care for fetuses with fatal defects and better integrate medical staff into the perinatal care process.

Opieka psychologiczna w paradygmacie opieki paliatywnej w perinatologii nad rodzicami po potwierdzeniu wad letalnych u płodu/dziecka. Doświadczenia Ginekologiczno-Położniczego Szpitala Klinicznego Uniwersytetu Medycznego w Poznaniu

100%

Łuczak-Wawrzyniak J., Borkowska-Kłos M., Gruca-Stryjak K.

Człowiek i Społeczeństwo

2024

vol. 57

67-95

The paper discusses the role of a clinical psychologist in the psychological care model within the interdisciplinary team dealing with perinatal palliative care at the Gynecological and Obstetrics Clinical Hospital of the Medical University of Poznań. In the context of the challenges of prenatal diagnosis, which provides information about the child’s health but also medicalizes the parents’ experiences, this work explores the psychological impact of receiving information about a fatal fetal/child defect on parents. Psychological interventions are analyzed for their impact on the decision-making process and the emotional state of parents, highlighting the need to include palliative care as a form of support for the family, beyond merely a medical procedure. The authors emphasize that accompanying parents while waiting for the birth of a child with lethal defects requires an interdisciplinary approach involving specialists from various fields, such as gynecology, perinatology, genetics, neonatology, and obstetrics, as exemplified by the Gynecological and Obstetrics Clinical Hospital, Medical University of Poznań. The work underscores that effective cooperation between the team and parents is rooted in the concept of assistance, characterized by openness and empathy, fostering emotional support and enabling parents to regain a sense of control and optimism. In conclusion, the article demonstrates how integrating medical knowledge and psychological practices in the context of perinatal palliative care can enhance understanding of parents’ needs and support them in navigating difficult decisions and emotions related to the diagnosis of a lethal fetal defect, thereby improving their parenting experience.

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2 Człowiek i Społeczeństwo

2 Borkowska-Kłos M.

2 Gruca-Stryjak K.

2 Łuczak-Wawrzyniak J.

2 2024

Search results

Płód/ dziecko z zespołem wad letalnych: od diagnozy do końca życia. Doświadczenia personelu medycznego oraz rodziców w ramach perinatalnej opieki paliatywnej

Opieka psychologiczna w paradygmacie opieki paliatywnej w perinatologii nad rodzicami po potwierdzeniu wad letalnych u płodu/dziecka. Doświadczenia Ginekologiczno-Położniczego Szpitala Klinicznego Uniwersytetu Medycznego w Poznaniu