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In the Czech Republic, it is women who are usually the primary carers of elderly family members, while men tend to be less involved and perform more concrete, visible care tasks. In this article I focus on the cases of men acting as the primary carer for a wife with dementia at home in cooperation with respite services. The data are drawn from an analysis of participant observations in the carers’ households and from an analysis of semi-structured interviews with the men acting as primary carers and with respite services workers. This article shows the repertoires of care that have been used by men as caregivers and points out the limitations attached to distinguishing and categorising care as ‘female’ and ‘male’. It investigates gendered aspects of long-term caring at home and shows how men in the role of primary carers deal with the challenging situations that they face while providing everyday care at home.
EN
Critique is one of the social sciences’ most respectable tasks, especially when its aim is to emancipate people oppressed for their otherness. However, there is also a critique of critique as a disabling tool, replacing the obvious actors revealed as ‘fictitious’ with synthetic objects that the critic herself deems more ‘factual’. This article understands the critical gesture as a pragmatic resource for re-organising the field of dis/abilities. In the first part of the article, we make three critical gestures together with José, a person identified as mentally ill. A paranoid vision of a secret conspiracy, a naturalising concept of disease, and the critique of stigma all seek to radically redraw the dis/ability coordinates, but their emancipatory potential is thwarted by the complex interconnectedness of their objects. José’s recovery thus ultimately hinges on a delicate balancing act combining critique and composing. In this sense, his effort resembles the careful treading of lay and professional critics in the last part of our text, in which we try to solve problems of living with dementia together with the Hanuš family. While the critical gesture has an essential role to play here as well, close ethnographic encounters are rather about jointly articulating the critical matters of care, wherein the problematic agencies of both obvious and not-so-obvious actors are acknowledged.
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