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Meandry péče: když muži doma pečují o ženy s demencí

100%
Jahodová D.
Gender a výzkum / Gender and Research
|
2021
|
vol. 22
|
issue 2
87-109
EN
In the Czech Republic, it is women who are usually the primary carers of elderly family members, while men tend to be less involved and perform more concrete, visible care tasks. In this article I focus on the cases of men acting as the primary carer for a wife with dementia at home in cooperation with respite services. The data are drawn from an analysis of participant observations in the carers’ households and from an analysis of semi-structured interviews with the men acting as primary carers and with respite services workers. This article shows the repertoires of care that have been used by men as caregivers and points out the limitations attached to distinguishing and categorising care as ‘female’ and ‘male’. It investigates gendered aspects of long-term caring at home and shows how men in the role of primary carers deal with the challenging situations that they face while providing everyday care at home.
2
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Is home care an issue for primary health care? Expert views from Poland and Estonia

88%
Põlluste K., Marcinowicz L., Chlabicz S.
Family Medicine & Primary Care Review
|
2016
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issue 4
455-459
3
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The resources of adults taking care of their elderly parents at home – a research report

87%
Bartnikowska U., Ćwirynkało K.
Interdyscyplinarne Konteksty Pedagogiki Specjalnej
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2020
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issue 29
7-23
PL
Considering the increased demographic aging and system changes in the welfare system in Poland, home care became one of the most important forms of taking care of disabled or elderly persons. Although the country is rooted in the idea of a nanny state, based on large institutions and providing minimum income, for a long time now family has been considered as the basic provider of informal care to the elderly. The aim of the present study is to give some insight into the resources of adult children providing care to their elderly, disabled parents. In order to acquire a comprehensive perception of the phenomenon, the authors chose an interpretavist paradigm and applied a phenomenographic method. 21 participants, aged 41–65, who were caregivers of their parents, took part in semi-structured interviews. Two main research problems were formulated: (1) How do the participants perceive their resources as caregivers of their elderly, disabled parents? (2) What kind of support related to the care of their parents do they consider essential? Results: The participants distinguish two main kinds of resources: internal (e.g. values, passions, feelings for parents, economic situation) and external (e.g. parents, family, friends, professionals, medical equipment and centers they have access to). The narratives of the participants also indicate a number of needs they experience. Implications for practice are discussed.
4
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How to support working family carers? British initiatives as a practical means to reduce loneliness in everyday life of family caregivers in Poland

51%
Janowicz A. M., Klimek M., Krakowiak P.
Family Forum
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2021
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vol. 11
129-149
EN
Among various publications regarding end-of-life care in Poland there is one piece of important research that shows a difficult situation for family caregivers in end-of-life care in Poland, who often lack recognition and support and face a lonely struggle, especially in home care settings (Janowicz, 2019a). The Polish Government published documents in support of family caregivers for the first time in 2019, recognizing respite care and allocating money to some of them. Poland has successfully implemented British standards of hospice and palliative care, making it the best in Central-Eastern Europe; the same could be done in supporting carers in family settings (Krakowiak, 2020a). We have already learnt and benefited from the experience of the British organisation Carers UK, who have been operating successfully for more than 50 years and working towards inclusion of formal and informal care (Klimek, 2020). But how can we move forward in helping those who face loneliness and feelings of helplessness as family carers? We can learn from those who have already developed tools and created strategies supporting family caregivers. Exploring the educational strategies of supporting organizations from the UK, will help to point towards possible solutions to this social and educational challenge in Poland, helping to reduce the loneliness of carers in the home care settings. Most families still feel isolated, while most of our local communities do not support those who care, often for many months and years. Social educators and social workers need to tackle the questions of loneliness and isolation that many family caregivers face. First steps have been made and first publications issued, but more robust strategies and practical solutions are needed. Newest facts and figures from Carers UK documents and Best Practice In Supporting Carers by Carer Positive Employer in Scotland (2020) will help to show existing strategies used for and by employers. Among many existing initiatives this one regarding combining care and work could be very important to recognise the needs of working carers, sharing their job with the duty of constant care at home. Action is urgently needed in Poland, where many people do a full-time job alongside caring at home. Recognition of family carers’ needs by their workplace, support from employers and flexibility in working hours is still a rare exception, and it should be changed. The Covid-19 pandemic has fully exposed the problems of carers of dependent people around the world and also in Poland, especially difficult for those who combine care with work.
5
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The Loneliness of Home Care Family Caregivers in Poland. Inspirations from Carers UK regarding Social Education for their Inclusion and Support

51%
Krakowiak P.
Paedagogia Christiana
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2020
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vol. 1/45
185-200
EN
Over the last 40 years in Poland, we have been able to change attitudes towards patients with cancer and their family carers. We have learnt from the worldwide hospice movement, and have created our own strategies to provide effective social education for end-of-life care. The nationwide project, Hospicjum to też życie (Hospice is also life), has helped our hospice-palliative care, but also improved the social acceptance of end-of-life care and support for families of cancer patients in Poland. However, the situation of many elderly and house-bound people, especially for patients with dementia and their families, is still very different in Poland. Most families still feel ashamed of being the family with ‘mental problems’, often isolating themselves from others. Most of our local communities do not support those who suffer and those who care for them, often for many years, in their homes. Social educators and social workers have to address this issue of the loneliness and isolation of many family caregivers: How can one handle feelings of guilt, isolation and loneliness, when one is a family caregiver for someone seriously ill at home? We can gain useful advice from the experience of the British organisation Carers UK. Given that there are already good experiences with cancer patients and their families within the hospice movement in Poland, we can prepare our community leaders, social workers and local communities, to help those other ‘lonely heroes’ of caring at home to feel more included and supported by us. We can learn from those who have already developed tools and created strategies for supporting family caregivers. Exploring the educational strategies of the successful organisation Carers UK (www.carersuk.org) will help to indicate the main solutions to this social and educational challenge in Poland, thus helping to reduce the loneliness of family carers, especially in home care.
PL
W ciągu ostatnich czterdziestu lat w Polsce byliśmy w stanie zmienić podejście do pacjentów z chorobą nowotworową i ich opiekunów rodzinnych. Od światowego ruchu hospicyjnego nauczyliśmy się opieki, tworząc własne strategie edukacji społecznej w zakresie opieki nad osobami u kresu życia. Ogólnopolski projekt: Hospicjum to też życie pomógł opiece paliatywno-hospicyjnej, poprawiając także społeczną akceptację opieki u kresu życia oraz wsparcie dla rodzin osób chorych na raka w Polsce. Sytuacja wielu osób starszych, uwięzionych w domach, szczególnie w przypadku pacjentów z demencją i ich rodzin, jest w Polsce ciągle zupełnie inna. Większość rodzin wciąż wstydzi się bycia rodziną z „problemami psychicznymi”, często izolując się od innych wokoło. Większość naszych lokalnych społeczności nie wspiera tych, którzy cierpią w domach, i tych, którzy się nimi zajmują, opiekując się nimi często przez wiele lat. Pedagodzy społeczni i pracownicy socjalni muszą odpowiedzieć na pytania dotyczące samotności i izolacji wielu opiekunów rodzinnych: jak radzić sobie z poczuciem winy, izolacji i samotności, gdy jesteś opiekunem rodzinnym dla osoby poważnie chorej w domu? Wiele praktycznych porad można zaczerpnąć z doświadczeń brytyjskiej organizacji Carers UK. Po dobrych doświadczeniach zmian w opiece nad pacjentami z chorobą nowotworową i ich rodzinami w ruchu hospicyjnym w Polsce, możemy przygotować liderów społeczności lokalnych i pracowników socjalnych do pomocy licznym „samotnym bohaterom” opieki nad chorymi w domu, aby czuli się bardziej włączani i wspierani przez nas. Możemy nauczyć się wiele od tych, którzy już opracowali narzędzia i całe strategie wspierające opiekunów rodzinnych. Badanie elementów edukacyjnych działań odnoszącej sukcesy organizacji Carers UK (www.carersuk.org) pomoże wskazać główne rozwiązania tego wyzwania społeczno-edukacyjnego w Polsce, wspomagając podejmowane już w tym zakresie działania, mające na celu zmniejszenie osamotnienia opiekunów rodzinnych osób u kresu życia w naszym kraju.
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