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PL
The aim of the article is to present the subjective perspective of a person with congenital low vision who experienced gradual vision deterioration up to total loss. The case study method was used, in which the narrative biographic interview was the main technique of collecting data. In the analysed narratives, certain milestones were identified in the process of coping with the consequences of progressive impairment. Those were the situations when the subject was no longer able to perform a specific task, which she had earlier performed under visual control. They made the subject realise the progressive nature of the disease and inevitably confronted her with the acquisition of permanent severe impairment. Those situations caused temporary disruption of her psychological balance and increased her demand for emotional support. With time, however, they also motivated the subject to use previously rejected rehabilitation devices and techniques. Lack of knowledge of functional implications of eye conditions (including reduced acuity and contrast sensitivity, field defects, light/dark adaptation problems, etc.) among family members and other people hindered the process of providing optimal instrumental support to the subject.
PL
Kornelia Czerwińska, Izabella Kucharczyk, Senior citizens losing vision as a challenge to contemporary special education. Interdisciplinary Contexts of Special Pedagogy, no. 25, Poznań 2019. Pp. 333-351. Adam Mickiewicz University Press. ISSN 2300-391X. DOI: https://doi.org/10.14746/ikps.2019.25.14 Acquiring blindness or low vision at the senior age usually results in decreased quality of life due to a decrease in functional performance in the areas of activities of everyday activities, spatial orientation and mobility, physical activity, spending free time and obtaining information. Loss of vision also implies serious emotional consequences, which in the absence of professional therapeutic help and social support can lead to mental health disorders. Research analyses indicate that the level of satisfying rehabilitation needs of seniors who are losing vision is relatively low, and the specificity of their functioning resulting from the coexistence of various health problems is rarely included in support programs. The aim of the article is to indicate areas that have been so far neglected in the rehabilitation of elderly people who have acquired visual impairment and to formulate proposals aimed at increasing the availability and quality of therapeutic services for this social group.
PL
Performing social roles, including family-related ones, by people with visual impairment is associated with experiencing various types of difficulties It is basically a consequence of the socially established negative image of these people who areperceived as not fully competent and requiring assistance. Previous few studies devoted to the motherhood of blind and partially sighted women indicate relatively frequent reactions of their social environment expressing the belief that a visually impaired woman is not able to perform her role as a wife and mother in a proper way. The psychosocial situation of fathers with visual impairment is rarely analysed in research activities, and knowledge of the relationship between gradual loss of vision and experience of fatherhood is relatively poor. The aim of the article is to present the results of a qualitative study focused on learning the subjective experience of performing the role of a parent by a man with progressive vision loss. In the biographical study of an individual case, the narrative interview technique was used, and the analysis of the collected material was referred to such spheres of experiencing fatherhood as: the concept of role, sources of satisfaction and positive experience related to the role, perceived relationships between the way of performing the role and progressive impairment.
EN
In its analysis of visual culture accessibility for people with vision loss, this article refers to the basic types of visual impairments while highlighting the diversity of the groups and needs of the blind and visually impaired. Philosophical metaphors of statues and buckets are used to depict the cognitive situation of people with visual impairments. Seeking to capture the theoretical nature of the blind subject, the paper does not devalue their vision loss but shows that their aesthetic experience may be as valuable as that of a person without such impairment. The next section offers an overview of selected cultural events and good artistic practices in terms of visual culture accessibility, with a particular focus on the exhibition Choroba jako źródło sztuki (Illness as a Source of Art), held at the National Museum in Poznań in 2019. The problem of visual impairment in visual culture is discussed from several perspectives: that of a blind observer, a blind artist, and blind society (mind-blindness).
EN
Becoming blind in adulthood, which is a serious permanent disability, is considered to be a critical life event that lowers a person’s well-being and increases the need for social support. The effectiveness of support depends on many interrelated factors, among which the following are of fundamental importance: the nature of the problems experienced, individual traits of the person with acquired blindness and social networks’ characteristics. Effective support facilitates the process of adaption to vision loss as well as prevents mental disorders and a permanent deterioration of the quality of life. Lack of or inadequate social support as well as support that is not adapted to the current needs and capabilities of the person losing his or her vision in terms of its scope and type has a negative impact on the coping process. This article’s purpose is to review and analyze selected research on relationships between various aspects of social support - emotional and tangible support in particular – and adaptation to vision loss in adulthood. It presents studies whose findings have high application value in designing effective rehabilitation models for adults with acquired blindness and in supporting their family members.
PL
Nabycie w fazie dorosłości poważnej, trwałej niepełnosprawności, jaką jest niewidzenie, uznaje się za krytyczne zdarzenie życiowe, które obniża dobrostan osoby i zwiększa zapotrzebowanie na wsparcie społeczne. Efektywność wsparcia zależy od wielu wzajemnie powiązanych czynników, wśród których zasadnicze znaczenie mają: charakter doświadczanych problemów, indywidualne cechy osoby ociemniałej oraz właściwości sieci społecznych. Skuteczne wsparcie ułatwia proces przystosowania do utraty wzroku oraz zapobiega zaburzeniom psychicznym i trwałemu pogorszeniu jakości życia. Brak lub niedostatek wsparcia społecznego, jak również jego niedostosowanie pod względem zakresu i rodzaju do aktualnych potrzeb i możliwości osoby tracącej wzrok odgrywa negatywną rolę w procesie radzenia sobie. Celem niniejszego artykułu jest dokonanie przeglądu i analizy wybranych badań dotyczących związków zachodzących między różnymi aspektami wsparcia społecznego, zwłaszcza emocjonalnego i instrumentalnego, a adaptacją do utraty wzroku w dorosłości. W tekście zaprezentowano badania, których wyniki mają dużą wartość aplikacyjną dla projektowania efektywnych modeli rehabilitacji dorosłych osób z nabytym niewidzeniem oraz wspomagania członków ich rodzin.
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