Courtesy stigma and self-concept in partners of individuals with a physical disability

• Authors: Stanisława Byra , Monika Parchomiuk

Title variants

PL

STYGMATYZACJA PRZENIESIONA A OBRAZ SIEBIE U MAŁŻONKÓW OSÓB Z NIEPEŁNOSPRAWNOŚCIĄ RUCHOWĄ

• Languages of publication: PL EN

Abstracts

PL

Artykuł zawiera analizę związku między stygmatyzacją przeniesioną (postrzeganą i odczuwaną) a obrazem siebie u małżonków osób z nabytą niepełnosprawnością ruchową. Przebadano 85 współmałżonków osób z nabytą niepełnosprawnością ruchową. Dane zebrano za pomocą Kwestionariusza Stygmatyzacji Przeniesionej (KSP) Stanisławy Byry i Moniki Parchomiuk oraz Skali Samooceny (TSCS) Williama H. Fittsa. Dokonana analiza ujawniła istotnie wyższe wyniki w stygmatyzacji postrzeganej niż odczuwanej. Przejawy stygmatyzacji przeniesionej są zbliżone na płaszczyźnie poznawczej, afektywnej i behawioralnej. Istnieją istotne związki między wymiarami stygmatyzacji przeniesionej a składnikami obrazu siebie. Największy udział w wyjaśnianiu nasilenia poszczególnych elementów obrazu siebie (m.in. ja etyczno-moralnego, ja osobistego, ja społecznego) badanych ma afektywny wymiar stygmatyzacji przeniesionej. Istotne, choć mniejsze, znaczenie ma również wymiar behawioralny, szczególnie dla poziomu ja fizycznego, samokrytycyzmu, tożsamości. Nie stwierdzono udziału wymiaru poznawczego stygmatyzacji przeniesionej w wyjaśnianiu obrazu siebie badanych małżonków.

EN

The article analyzes the relationship between (perceived and affiliate) courtesy stigma and self-concept among spouses of individuals with physical disabilities. The sample consisted of 85 spouses of individuals with physical disabilities. The data was collected using the Courtesy Stigma Questionnaire by Stanisława Byra and Monika Parchomiuk and the Tennessee Self-Concept Scale by William H. Fitts. The respondents reported significantly higher results for perceived stigma compared to affiliate stigma. Courtesy stigma manifestations are similar in the cognitive, affective and behavioral aspects. The study found significant relationships between the dimensions of courtesy stigma and self-concept aspects. The highest contribution in accounting for the specific aspects of self-concept (e.g. moral self, personal self, social self) is presented by the affective component of courtesy stigma. Statistically significant, although minor, contribution is also presented by the behavioral component, especially for the physical self, self-criticism and identity scales. The cognitive component of courtesy stigma was found not to account for the self-concept of the spouses in any way.

Keywords

EN

courtesy stigma; spouses; physical disability; self-concept; stygmatyzacja przeniesiona; małżonkowie; niepełnosprawność ruchowa; obraz siebie

• Publisher: Akademia Pedagogiki Specjalnej im. Marii Grzegorzewskiej. Wydawnictwo APS
• Journal: Człowiek - Niepełnosprawność - Społeczeństwo
• Year: 2017
• Issue: 2(36)
• Pages: 25-42

Contributors

author

Stanisława Byra

• Instytut Pedagogiki UMCS w Lublinie, ul. Narutowicza 12, 20-004 Lublin; tel. [phone]

author

Monika Parchomiuk

• Instytut Pedagogiki UMCS w Lublinie, ul. Narutowicza 12, 20-004 Lublin; tel. [phone]

References

• Abraham, C., Gregory, N., Wolf, L., Pemberton, R. (2002). Self-esteem, stigma and community participation amongst people with learning difficulties living in the community. Journal of Community & Applied Social Psychology, 12, 430–443.
• Andren, S., Elmstahl, S. (2008). The relationship between caregiver burden, caregivers’ perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17, 790–799.
• Angermeyer, M.C., Schulze, B., Dietrich, S. (2003). Courtesy stigma. A focus group study of relatives of schizophrenia patients. Social Psychiatry and Psychiatric Epidemiology, 38, 593–602.
• Arango-Lasprilla, J.C., Plaza, S.L., Drew, A., Romero, J.L., Pizarro, J.A., Francis, K., Kreutzer, J. (2010). Family needs and psychosocial functioning of caregivers of individuals with spinal cord injury from Colombia, South Africa. Neuro Rehabilitation, 27, 83–93.
• Ben-Zur, H. (2002). Coping, affects, and aging: The roles of mastery and self-esteem. Personality and Individual Differences, 32, 357–372.
• Blanes, L., Carmagnani, M.I.S., Ferreira, L.M. (2007). Health-related quality of life of primary caregivers of persons with paraplegia. Spinal Cord, 45, 399–403.
• Chan, R.C.K. (2000). How does spinal cord injury affect marital relationship? A story from both sides of the couple. Disability and Rehabilitation, 22, 17, 764–775.
• Chang, C.C., Sud, J.A., Tsaid, C.S., Yeng, C.F, Liui, J.H., Lin, C.J. (2015). Rasch analysis suggested three unidimensional domains for Affiliate Stigma Scale: Additional psychometric evaluation. Journal of Clinical Epidemiology, 68, 674–683.
• Chou, Y.C., Pu, C.Y., Lee, Y.C., Lin, L.C., Kroger, T. (2009). Effect of perceived stigmatization on the quality of life among aging female family carers: A comparison of carers of adults with intellectual disability and carers of adults with mental illness. Journal of Intellectual Disability Research, 53(7), 654–664.
• Corrigan, P.W., Miller, F.E., Watson, A.C. (2006). Blame, shame, and contamination: The impact of mental illness and drug dependence stigma on family members. Journal of Family Psychology, 20(20), 239–246.
• Corrigan, P.W, Kerr, A., Knudsen, L. (2005). The stigma of mental illness: Explanatory models and methods for change. Applied and Preventive Psychology, 11, 179–190.
• Craig, G.M., Scambler, G. (2006). Negotiating mothering against the odds: Gastronomy tube feeding, stigma, governmentality and disabled children. Social Science and Medicine, 62, 1115–1125.
• Crocker, J., Major, B. (1989). Social stigma and self-esteem: The self-protective properties of stigma. Psychological Review, 96, 4, 608–630, ERIC Number: EJ403275.
• Crocker, J., Quinn, D.M. (2008). Piętno społeczne i Ja: znaczenia, sytuacje i samoocena. In: T.F. Heatheron, R.E. Kleck, M.R. Hebl, J.G. Hull (eds.), Społeczna psychologia piętna (pp. 149–174). Warszawa: PWN.
• Dagnan, D., Waring, M. (2004). Linking stigma to psychological distress: Testing a social-cognitive model of the experience of people with intellectual disabilities. Clinical Psychology and Psychotherapy, 11, 247–254.
• Dickson, A., O’Brien, G., Ward, R., Allan, D., O’Carroll, R. (2010). The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse’s experience. Psychology and Health, 25, 9, 1101–1120.
• Diehl, M., Hastings, C.T., Stanton, J.M. (2001). Self-concept differentiation across the adult life span. Psychology and Aging, 16(4), 643–654.
• Dwyer, P.C, Snyder, M., Omoto, A.M. (2013). When stigma-by-association threatens, self-esteem helps: Self-esteem protects volunteers in stigmatizing contexts. Basic and Applied Social Psychology, 25, 88–97.
• Ebrahimzadeh, M.H., Shojaei, B-S., Golhasani-Keshtan, F., Soltani-Moghaddas, S.H., Fattahi, A.S., Mazloumi, S.M. (2013). Quality of life and the related factors in spouses of veterans with chronic spinal cord injury. Health and Quality of Life Outcomes, 11(48), 1–6.
• Feigin, R. (1994). Spousal adjustment to a postmarital disability in one partner. Family Systems Medicine, 12, 3, 235–247.
• Feldman, D.B., Crandall, C.S. (2007). Dimensions of mental illness stigma: What about mental illness causes social rejection? Journal of Social and Clinical Psychology, 26, 2, 137–154.
• Ferro, M.A., Boyle, M.H. (2013). Self-concept among youth with a chronic illness: A meta-analytic review. Health Psychology, 32(8), 839–848.
• Goffman, E. (2007). Piętno. Rozważania o zranionej tożsamości. Gdańsk: GWP.
• Goldstein, S.B., Johnson, V.A. (1997). Stigma by association: Perceptions of the dating partners of college students with physical disabilities. Basic and Applied Social Psychology, 19, 4, 495–504.
• Gray, D.E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health and Illness, 24(6), 734–749.
• Green, S.E. (2004). The impact of stigma on maternal attitudes toward placement of children with disabilities in residential facilities. Social Science and Medicine, 59, 799–812.
• Green, S.E. (2003). “What do you mean ‘what’s wrong with her?”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57, 1361–1374.
• Heijer den, M., Seynaeve, C., Vanheusden, K., Duivenvoorden, H.J., Vos, J., Bartels, C.C.M., Menke-Pluymers, M.B.E., Tibben, A. (2011). The contribution of self-esteem and self-concept in psychological distress in women at risk of hereditary breast cancer. Psychooncology, 20, 1170–1175.
• Isaksson, G., Josephsson, S., Lexell, J., Skär, L. (2008). Men’s experiences of giving and taking social support after their wife’s spinal cord injury. Scandinavian Journal of Occupational Therapy, 15, 236–246.
• Jacoby, A. (2002). Stigma, epilepsy, and quality of life. Epilepsy and Behavior, 3, 10–20.
• Judge, T.A., Erez, A., Bono, J.E., Thoresen, C.J. (2002). Are measures of self-esteem, neuroticism, locus of control, and generalized self-efficacy indicators of a common core construct? Journal of Personality and Social Psychology, 83(3), 693–710.
• Leszkowicz-Baczyńska, Ż. (2001). Samostygmatyzacja rodzin z dzieckiem upośledzonym umysłowo i jej społeczne konsekwencje. In: Z. Kawczyńska-Butrym (ed.), Problemy opieki i środowiska życia osób niepełnosprawnych (pp. 81–95). Olsztyn: Olsztyńska Szkoła Wyższa im. Józefa Rusieckiego.
• Link, B.G., Phelan, J.C. (2001). Conceptualizing stigma. Annual Review of Sociology, 27, 363–385.
• Lundberg, B., Hansson, L., Wentz, E., Björkman, T. (2009). Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? Journal of Psychiatric and Mental Health Nursing, 16, 6, 516–522.
• Mak, W.W.S., Cheung, R.Y.M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21, 532–545.
• Mak, W.W.S, Kwok, Y.T.Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70, 2045–2051.
• Manigandan, C., Saravanan, B., Macaden, A., Gopalan, L., Tharion, G., Bhattacharji, S. (2000). Psychological wellbeing among carers of people with spinal cord injury: A preliminary investigation from South India. Spinal Cord, 38, 559–562.
• Martz, E. (2004). A philosophical perspective to confront disability stigmatization and promote adaptation to disability. Journal of Loss and Trauma, 9, 139–158.
• McRae, H. (1999). Managing courtesy stigma: The case of Alzheimer’s disease. Sociology of Health and Illness, 21(1), 54–70.
• Miller, C.T, Major, B. (2008). Radzenie sobie z piętnem i uprzedzeniem. In: T.F. Heatheron, R.E. Kleck, M.R. Hebl, J.G. Hull (eds.), Społeczna psychologia piętna (pp. 225–250). Warszawa: WN PWN.
• Moses, T. (2009). Stigma and self-concept among adolescents receiving mental health treatment. American Journal of Orthopsychiatry, 79, 2, 261–274.
• Nario-Redmond, M.R, Noel, J.G., Fern, E. (2013). Redefining disability, re-imagining the self: Disability identification predicts self-esteem and strategic responses to stigma. Self and Identity, 12, 5, 468–488.
• Nelson, T.D. (2003). Psychologia uprzedzeń. Gdańsk: GWP.
• Noyman-Veksler, G., Weinberg, D., Fennig, S., Davidson, L., Shahar, G. (2013). Perceived stigma exposure in schizophrenia: The key role of self-concept clarity. Self and Identity, 12, 6, 663–674.
• O’Brien, M.T. (1993). Multiple sclerosis: Stressors and coping strategies in spousal caregivers. Journal of Community Health Nursing, 10(3), 123–135.
• Phelan, S.M, Griffin, J.M., Hellerstedt, W.L., Sayer, N.A., Jensen, A.C., Burgess, D.J., van Ryn, M. (2011). Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury. Disability and Health Journal, 4, 177–184.
• Post, M.W.M., Bloemen, J., de Witte, L.P. (2005). Burden of support for partners of persons with spinal cord injuries. Spinal Cord, 43(2), 311–319.
• Rivera, P.A., Elliott, T.R., Berry, J.W., Shewehuk, R.M., Oswald, K.D., Grant, J. (2006). Family caregivers of women with physical disabilities. Journal of Clinical Psychology in Medical Settings, 13(4), 431–440.
• Rüsch, N., Angermeyer, M.C., Corrigan, P.W. (2005). Mental illness stigma: Concepts, consequences, and initiatives to reduce stigma. European Psychiatry, 20, 529–539.
• Scheier, M.F., Carver, C.S. (1985). Optimism, coping, and health: Assessment and implications of generalized outcome expectancies. Health Psychology, 4, 219–247.
• Schulze, B., Angermeyer, M.C. (2003). Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Social Science and Medicine, 56, 299–312.
• Smart Richman, L., Leary, M.R. (2009). Reactions to discrimination, stigmatization, ostracism, and other forms of interpersonal rejection: A multimotive model. Psychological Review, 116, 2, 365–383.
• Stengler-Wenzke, K., Trosbach, J., Dietrich, S., Angermeyer, M.C. (2004), Experience of stigmatization by relatives of patients with obsessive compulsive disorder. Archives of Psychiatric Nursing, 18(3), 88–96.
• Surkan, P.J., Mukherjee, J.S., Williams, D.R., Eustache, E., Louis, E., Jean-Paul, T., Lambert, W., Scanlan, F.C., Oswald, C.M., Smith Fawzi, M.C. (2010). Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti. AIDS Care, 22(7), 803–815.
• Tan, S., Yeoh, A.L., Choo, I., Huang, A., Ong Hong, S., Ismail, H., Ang, P.P., Chan, Y.H. (2012). Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community. Journal of Clinical Nursing, 21, 2410–2418.
• Werner, P., Heinik, J. (2008). Stigma by association and Alzheimer’s disease. Aging and Mental Health, 12, 1, 92–99.
• Werner, S., Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34, 4103–4114.
• Wight, R.G., Aneshensel, C.S., Murphy, D.A., Miller-Martinez, D., Beals, K.P. (2006). Perceived stigma in AIDS caregiving dyads. Social Science and Medicine, 62, 444–456.

Identifiers

DOI

10.5604/01.3001.0010.5199