Zaburzenia ze spektrum autyzmu. Jakie metody interwencji należy wybrać?

• Authors: Ana Paula Antunes Alves
• Languages of publication: EN

Abstracts

EN

Considering that the child’s development is a network of interactions between the family, peers, caregivers and society forces us to look at the child with differentiated skills using lenses with different perspectives. Such an approach implies a choice of both the instruments that are used to observe or intervene, and method of interpreting the child’s behavior, which, while not following the typical development path, does not lose the features of being an actor acting on the basis of his own will, but also an organizer of his own actions, based on changes and their dynamics. Based on the ecological development theory, research was conducted to understand the perspectives of various actors (experts, professionals, parents) regarding educational intervention related to specific programs for students with autism spectrum disorders. Using the qualitative case study methodology, different views were noted that emerged in the narratives of children with autism spectrum disorders.

PL

Rozumienie tego, że rozwój dziecka to sieć interakcji między rodziną, rówieśnikami, opiekunami i społeczeństwem, skłania do spojrzenia na nie poprzez pryzmat soczewek o różnych perspektywach. Takie podejście implikuje wybór zarówno instrumentów, które są wykorzystywane do obserwacji czy interwencji, jak i sposobu interpretacji zachowań dziecka, które nie wpisując się w ścieżkę rozwojową uznawaną za typową, nie traci cech bycia aktorem działającym w oparciu o własną wolę, ale i organizatorem własnych działań bazującym na zmianach i ich dynamice. Opierając się na teorii rozwoju ekologicznego, przeprowadzono badania, aby zrozumieć perspektywy różnych podmiotów (ekspertów, specjalistów, rodziców) w zakresie interwencji edukacyjnej związanej z określonymi programami dla uczniów ze spektrum autyzmu. Korzystając z jakościowej metodologii studium przypadku, odnotowano różne opinie, które pojawiły się w narracjach dzieci z zaburzeniami ze spektrum autyzmu.

Keywords

EN

child; autism spectrum disorders; methodology; intervention; case study

PL

dziecko; zaburzenia ze spektrum autyzmu; metodologia; interwencja; studium przypadku

• Publisher: Wydawnictwo Uniwersytetu Marii Curie-Skłodowskiej
• Journal: Prima Educatione
• Year: 2020
• Volume: 4

Dates

published

2020

online

2021-03-29

Contributors

author

Ana Paula Antunes Alves

References

• LITERATURE
• Anderson C. (2010). Presenting and evaluating qualitative research. American Journal of Pharmaceutical Education, 74(8), pp. 1–7. DOI: https://doi.org/10.5688/aj7408141
• Artigas-Pallarés J., Guitart M., Gabau-Vila E. (2013). Bases geneticas de los transtornos del neurodesarrollo. Revista Neurologia, 56(1), pp. 23–34. DOI: https://doi.org/10.33588/rn.56S01.2012658
• Auyeung B., Wheelwright S., Allison C., Atkison M., Samarawickrema N., Baron-Cohen S. (2009). The Children’s Empathy Quotient and Systemizing Quotient: Sex Differences in Typical Development and in Autism Spectrum Conditions. Journal of Autism and Developmental Disorders, 39(11), pp. 1509–1521. DOI: https://doi.org/10.1007/s10803-009-0772-x
• Barnbaum D.R. (2008). The Ethics of Autism: Among Them, but Not of Them. Bloomington: Indiana University Press.
• Baron-Cohen S. (1995). Mindblindness: An Essay on Autism and Theory of Mind. Boston: MIT Press/Bradford Books.
• Baron-Cohen S. (2008a). Autism and Asperger Syndrome. New York: Oxford University Press.
• Baron-Cohen S. (2008b). Theories of the autistic mind. Autism, 21(2), pp. 112–116.
• Baron-Cohen S. (2009). The empathising – systemising theory of autism: implications for education. Tizard Learning Disability Review, 14(3), pp. 4–13.
• Begeer S., Gevers C., Clifford P., Verhoeve M., Kat K., …, Boer F. (2011). Theory of Mind Training in Children with Autism: A Randomized Controlled Trial. Journal of Autism and Developmental Disorders, 41, pp. 997–1006. DOI: https://doi.org/10.1007/s10803-010-1121-9
• Bishop S.L., Luyster R., Richler J., Lord C. (2008). Diagnostic Assessment. In: K. Chawarska, A. Klin, R. Paul, F. Volkmar (eds.), Autism Spectrum Disorders in Infants and Toddlers (pp. 23–49). New York: Guilford Press.
• Boyd B.A., Hume K., McBee M.T., Alessandri M., Gutierrez A., …, Odom S.L. (2013). Comparative efficacy of LEAP, TEACCH and non-model-specific special education programs for preschoolers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44, pp. 366–380, DOI: https://doi.org/10.1007/s10803-013-1877-9
• Bronfenbrenner U. (1979). The Ecology of Human Development: Experiments by Nature and Design. Cambridge: Harvard University Press.
• Charman T. (2010). Developmental approaches to understanding and treating autism. Folia Phoniatrica et Logopaedica, 62(4), pp. 166–177. DOI: https://doi.org/10.1159/000314032
• Charman T., Pellicano L., Peacey L.V., Peacey N., Forward K., Dackrell J. (2011). What is good practice in Autism Education. In: Autism Education Trust Report. Centre for Research in Autism and Education (CRAE). London: Institute of Education University of London.
• Chawarska K., Klin A., Volkmar F.R. (2008). Autism Spectrum Disorders in Infants and Toddlers: Diagnosis, Assessment, and Treatment. New York: Guilford Press.
• Correia L.M. (2013a). Inclusão e necessidades educativas especiais. Coleção Necessidades Educativas Especiais. Porto: Porto Editora.
• Creswell J.W., Hanson W.E., Plano V.L.C., Morales A. (2007). Qualitative Research Designs: Selection and Implementation. The Counseling Psychologist, 35(2), pp. 236–264. DOI: https://doi.org/10.1177/0011000006287390
• Denzin N.K., Lincoln Y.S. (1994). Introduction: Entering the field of qualitative research. In: N.K. Denzin, Y.S. Lincoln (eds.), Handbook of Qualitative Research (pp. 1–17). Thousand Oaks: Sage Publications.
• DeWalt K.M., DeWalt B.R. (2002). Participant Observation: A Guide for Fieldworkers. Walnut Creek: AltaMira Press.
• Dingfelder H.E., Mandell D.S. (2011). Bridging the Research-to-Practice Gap in Autism Intervention: An Application of Diffusion of Innovation Theory. Journal Autism Developmental Disorders, 41(5), pp. 597–609. DOI: https://doi.org/10.1007/s10803-010-1081-0
• DSM-5. (2020). Diagnostic and Statistical Manual of Mental Disorders. DSM-5. Washington: American Psychiatric Association.
• Ellingson L.L. (2009). Engaging Crystallization in Qualitative Research: An Introduction. Thousand Oaks: Sage.
• Elo S., Kyngas H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), pp. 107–115. DOI: https://doi.org/10.1111/j.1365-2648.2007.04569.x
• Emerson R.M., Fretz R.I., Shaw L.L. (1995). Writing Ethnographic Fieldnotes. Chicago: University of Chicago Press.
• Frith U. (2006). Autismo: Hacia una explicación del enigma. Madrid: Alianza Editorial.
• Fuentes-Biggi J., Ferrari-Arroyo M.J., Boada-Muñoz L., Tourino-Aguilera E., Artigas-Pallarés J., …, Posada-De la Paz M. (2006). Guia de buena práctica para el tratamiento de los trastornos del espectro do autista. Revista neurología, 43(7), pp. 425–438. DOI: https://doi.org/10.33588/rn.4307.2005750
• Gai X., Xie H.M., Perin J.C., Takahashi N., Murphy K., …, White P.S. (2012). Rare structural variation of synapse and neurotransmission genes in autism. Molecular Psychiatry, 17(4), pp. 402–411. DOI: https://doi.org/10.1038/mp.2011.10
• Gillespie-Lynch K., Sepeta L., Wang Y., Marshall S., Gomez L., …, Hutman T. (2012). Early Childhood Predictors of the Social Competence of Adults with Autism. Journal of Autism and Developmental Disorders, 42, pp. 161–174. DOI: https://doi.org/10.1007/s10803-011-1222-0
• Graneheim U.H., Lundman B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, pp. 105–112. DOI: https://doi.org/10.1016/j.nedt.2003.10.001
• Greenspan S.I. (1992). Infancy and Early Childhood: The Practice of Clinical Assessment and Intervention with Emotional and Developmental Challenges. Madison: International Universities Press.
• Greenspan S.I., Lewis D. (2002). Affect-Based Language Curriculum (ABLC): An Intensive Program for Families, Therapists and Teachers. Bethesda: ICDL.
• Güemes-Carcaga I., Martín-Arribas M.C., Canal-Bedia R., Posada-De la Paz M. (2009). Evaluation de la eficacia de las intervenciones psicoeducativas en los transtornos del espectro autista. Madrid: IIER- Instituto de salud Carlos III.
• Happé F., Frith U. (2006). The Weak Coherence Account: Detail-focused cognitive style in Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 36, pp. 5–25. DOI: https://doi.org/10.1007/s10803-005-0039-0
• Hays P. (2004). Case Study Research. In: K.B. deMarrais, S.D. Lapan (eds.), Foundations for Research Methods of Inquiry in Education and the Social Sciences (pp. 217–234). TLF eBook. London: LEA Publishers.
• Howlin P., Magiati I., Charman T., MacLean Jr. W.E. (2009). Systematic Review of Early Intensive Behavioral Interventions for Children With Autism. American Journal of Intellectual and Developmental Disabilities, 114(1), 23–41. DOI: https://doi.org/10.1352/2009.114:23-41
• Hsieh H.F., Shannon S. (2005). Three Approaches to Qualitative Content Analysis. Qualitative Health Research, 15(9), pp. 1277–1288. DOI: https://doi.org/10.1177/1049732305276687
• Hume K., Boyd B., McBee M., Coman D., Gutierrez A., …, Odom S. (2011). Assessing implementation of comprehensive treatment models for young children with ASD: Reliability and validity of two measures. Research in Autism Spectrum Disorders, 5(4), pp. 1430–1440. DOI: https://doi.org/10.1016/j.rasd.2011.02.002
• Iovannone R., Dunlap G., Huber H., Kincaid D. (2003). Effective educational practices for students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 18(3), pp. 150–165. DOI: https://doi.org/10.1177/10883576030180030301
• Jolliffe T., Baron-Cohen S. (2001). A test of central coherence theory: Can adults with high-functioning autism or Asperger syndrome integrate fragments of an object? Cognitive Neuropsychiatry, 6(3), pp. 193–216. DOI: https://doi.org/10.1080/13546800042000124
• Kanner L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, pp. 217–250.
• Klin A. (2009). Embrancing the challlenge of bold theories of autismo. British Journal of Psychology, 100(1), pp. 29–32. DOI: https://doi.org/10.1348/000712608X371357
• Koegel L., Matos-Fredeen R., Lang R., Koegel R. (2011). Interventions for children with autism spectrum disorders in inclusive school settings. Cognitive and Behavioral Practice, 19(3), pp. 401–412. DOI: https://doi.org/10.1016/j.cbpra.2010.11.003
• Lawton K., Kasari C. (2013) Teacher implementation of joint attention intervention in preschool classrooms: Fidelity and context. Autism, 3(1), pp. 1–6. DOI: https://doi.org/10.4172/2165-7890.1000108
• Lima C.B. (2012). Perturbações do espectro do autismo. Manual prático de intervenção. Lisboa: LIDEL.
• Lombardo M.V., Chakrabarti B., Bullmore E.T., Sadek S.A., Pasco G., …, Baron-Cohen S. (2010). Atypical neural self-representation in autism. Brain, 133(2), pp. 611–624. DOI: https://doi.org/10.1093/brain/awp306
• Lord C., Wagner A., Rogers S., Szatmari P., Aman M., …, Yoder P. (2005). Challenges in evaluating psychosocial interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 35(6), pp. 695–708. DOI: https://doi.org/10.1007/s10803-005-0017-6
• Lord C., Bishop S.L. (2010). Autism Spectrum Disorders and commentaries: Diagnosis, Prevalence, and Services for Children and Families. Society for Research in Child Development, 24(2), pp. 1–21. DOI: https://doi.org/10.1002/j.2379-3988.2010.tb00063.x
• Lovaas O.I. (1981). Teaching Developmentally Disabled Children: The Me Book. Austin: PRO-ED.
• Magiati I., Moss J., Yates R., Charman T., Howlin P. (2011). Is the Autism Treatment Evaluation Checklist a useful tool for monitoring progress in children with autism spectrum disorders? Journal of Intellectual Disability Research, 55(3), pp. 302–312. DOI: https://doi.org/10.1111/j.1365-2788.2010.01359.x
• Magyar C.I. (2011). Developing and Evaluating Educational Programs for Students with Autism. Rochester: Springer.
• Manitoba Education Research Network. (2011). Applications and utility of Urie Bronfenbrenner’s bio-ecological theory. In: B. Lewthwaite (ed.), Manitoba Education Research Network. Monograph Series, 4.
• Marshall C., Rossman G. (2011). Designing Qualitative Research. California: SAGE Publications.
• Merriam S.B. (1998). Qualitative Research and Case Study Applications in Education. San Francisco: Jossey-Bass.
• Montgomery J.M., Stoesz B.M., McCrimmon A.W. (2013). Emotional Intelligence, Theory of Mind, and Executive Functions as Predictors of Social Outcomes in Young Adults With Asperger Syndrome. Focus on Autism and Other Developmental Disabilities, 28(1), pp. 4–13. DOI: https://doi.org/10.1177/1088357612461525
• Moons P., Budts W., De Geest S. (2006). Critique on the conceptualisation of quality of life: A review and evaluation of different conceptual approaches. International Journal of Nursing Studies, 43(7), pp. 891–901. DOI: https://doi.org/10.1016/j.ijnurstu.2006.03.015
• Mulas F., Ros-Cervera G., Millá M.G., Etchepareborda M.C., Montserrat L.A., Meneses T. (2010). Modelos de intervención en niños con autismo. Revista Neurología, 50(3), pp. 77–84. DOI: https://doi.org/10.33588/rn.50S03.2009767
• National Autism Center. (2011). A Parent’s Guide to Evidence-Based Practice and Autism. Massachusetts: National Autism Center.
• Ochs E., Kremer-Sadlik T., Sirota K.G., Solomon O. (2004). Autism and the social world: An anthropological perspective. Discourse Studies, 6(2), pp. 147–183. DOI: https://doi.org/10.1177/1461445604041766
• Ochs E., Solomon O. (2010). Autistic sociality. ETHOS. Journal of the Society for Psychological Anthropology, 38(1), pp. 69–92. DOI: https://doi.org/10.1111/j.1548-1352.2009.01082.x
• Odom S., Collet-Klingenberg L., Rogers S.J., Hatton D.D. (2010). Evidence-Based practices in interventions for children and youth with autism spectrum disorders. Preventing School Failure, 54(4), pp. 275–282. DOI: https://doi.org/10.1080/10459881003785506
• Oliveira G. (2010). Autismo: diagnóstico e orientação. Parte I: Vigilância, rastreio e orientação nos cuidados primários de saúde. Acta Pediátrica Portuguesa. Sociedade Portuguesa de Pediatria, 40(6), pp. 278–287.
• Oliveira G., Ataíde A., Marques C., Miguel T., Coutinho A.M., …, Vicente A.M. (2007). Epidemiology of autism spectrum disorder in Portugal: prevalence, clinical characterization, and medical conditions. Developmental Medicine & Child Neurology, 49, pp. 726–733. DOI: https://doi.org/10.1111/j.1469-8749.2007.00726.x
• Pisula E. (2010). The autistic mind in the light of neuropsychological studies. Acta Neurobiologiae Experimentalis, 70, p. 119–130.
• Pombo O. (2000). Hannah Arendt, Eric Weil, Bertrand Russel, Ortega e Gasset. Quatro textos excêntricos. Lisboa: Relógio D’Água.
• Portugal G. (1992). Ecologia do Desenvolvimento Humano de Bronfenbrenner. Aveiro: Centro de Investigação, Difusão e Intervenção Educacional.
• Quivy R., Campenhoudt L.V. (2008). Manual de investigação em ciências sociais. Lisboa: Gradiva.
• Reichow B. (2011). Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. Journal of Autism Developmental Disorders, 42(4), pp. 512–520. DOI: https://doi.org/10.1007/s10803-011-1218-9
• Reichow B., Volkmar F.R. (2010). Social Skills Interventions for Individuals with Autism: Evaluation for Evidence-Based Practices within a Best Evidence Synthesis Framework. Journal of Autism and Developmental Disorders, 40(2), pp. 149–166. DOI: https://doi.org/10.1007/s10803-009-0842-0
• Ryan C.S. (2011). Applied behavior analysis: Teaching procedures and staff training for children with autism. In: T. Williams (ed.), Autism Spectrum Disorders: From Genes to Environment. Croatia: InTech.
• Schopler E., Mesibov G.B., Hearsey K. (1995). Structured teaching in the TEACCH system. In: E. Schopler, G.B. Mesibov (eds.), Learning and Cognition in Autism (pp. 243–267). New York: Kluwer Academic/Plenum.
• Serrano A.M., Pereira A.P. (2011). Parâmetros recomendados para a qualidade da avaliação em intervenção precoce. Revista Educação Especial, 4(40), pp. 163–180.
• Solomon O. (2012). The uses of technology for and with children with autism spectrum disorders. In: L. L’Abate, D.A. Kaiser (eds.), Handbook of Technology in Psychology, Psychiatry, and Neurology: Theory, Research, and Practice (pp. 155–177). Hauppage: Nova Science Publishers.
• Stake R.E. (2009). A Arte da Investigação com Estudos de Caso. Lisboa: FCG.
• Stansberry-Brusnahan L.L., Collet-Klingenberg L.L. (2010). Evidence-based practices for young children with Autism Spectrum Disorders: Guidelines and recommendations from the National Resource Council and National Professional Development Center on Autism Spectrum Disorders. International Journal of Early Childhood Special Education, 2(1), pp. 45–56. DOI: https://doi.org/10.20489/intjecse.107957
• Tardif C. (2010). Autisme et pratiques d’intervention. Théories, méthodes, pratiques. Marseille: SOLAL.
• Theofilou P. (2013). Quality of Life: Definition and Measurement. Europe’s Journal of Psychology, 9(1), pp. 150–162. DOI: https://doi.org/10.5964/ejop.v9i1.337
• Tuchman R. (2013). Desconstruyendo los transtornos del espectro autista: perspectiva clínica. Revista Neurologia, 56(suppl. 1), pp. 3–12. DOI: https://doi.org/10.33588/rn.56S01.2012657
• Vismara L.A., Rogers S.J. (2010). Behavioral Treatments in Autism Spectrum Disorder: What Do We Know? Annual Review of Clinical Psychology, 6, pp. 447–468. DOI: https://doi.org/10.1146/annurev.clinpsy.121208.131151
• Walsh P., Elsabbag M., Bolton P., Singh I. (2011). In search of biomarkers for autism: scientific, social and ethical challenges. Nature, 12, pp. 603–612. DOI: https://doi.org/10.1038/nrn3113
• Warren Z., McPheeters M.L., Shate N., Foss-Heig J., Glasser A., Veenstra-VanderWeele J. (2011). A Systematic Review of Early Intensive Intervention for Autism Spectrum Disorders. Pediatrics, 127(5), pp. e1303-e1311. DOI: https://doi.org/10.1542/peds.2011-0426
• White M.D., Marsh E.E. (2006). Content Analysis: A Flexible Methodology. Library Trends: Research Methods, 55(1), pp. 22–45. DOI: https://doi.org/10.1353/lib.2006.0053
• Yin R. (2003). Case study research: Design and methods. Thousand Oaks: Sage.
• NETOGRAPHY
• Centers for Disease Control and Prevention. (2020). Data & Statistics on Autism Spectrum Disorder. Retrieved from: www.cdc.gov/about/organization/cio-orgcharts/index.html (access: 12.12.2020).
• Correia L.M. (2013b). Nuno Crato e os alunos com necessidades educativas especiais. Retrieved from: www.dn.pt/opiniao/opiniao-dn/convidados/nuno-crato-e-os-alunos-com-necessidades-especiais-3451242.html (access: 11.06.2020).
• National Autism Center. (2009). National Standards Project, Phase 1: Addressing the need for evidence-based practice guidelines for autism spectrum disorder. Retrieved from: www.nationalautismcenter.org/about/national.php (access: 22.08.2020).
• National Autism Center. (2015). National Standards Project, Phase 2: Addressing the need for evidence-based practice guidelines for autism spectrum disorder. Retrieved from: www.autismdiagnostics.com/assets/Resources/NSP2.pdf (access: 10.09.2020).

Identifiers

DOI

10.17951/pe.2020.4.119-133