Full-text resources of CEJSH and other databases are now available in the new Library of Science.
Visit https://bibliotekanauki.pl

PL EN


2022 | 18 | 2 | 72-88

Article title

The Institutional Conditions of the Life of People with Intellectual Disabilities (ID) in a Residential Care Facility

Content

Title variants

PL
Instytucjonalne uwarunkowania życia osób z niepełnosprawnością intelektualną zamieszkujących domy pomocy społecznej w Polsce

Languages of publication

Abstracts

PL
Celem artykułu jest ukazanie, charakteryzującego się swoistą ambiwalencją, systemu instytucjonalnej opieki nad osobami z niepełnosprawnością intelektualną w Polsce. Cały wywód opiera się na dwóch zasadniczych i dychotomicznych kategoriach: kontroli i podporządkowaniu versus autonomii i niezależności. Każda z tych kategorii jest powiązana z jedną z dwóch głównych perspektyw postrzegania domu pomocy społecznej. Pierwszą, wywodzącą się z goffmanowskiej wizji instytucji totalnej, w której jednostkę przedstawia się jako uprzedmiotowiony obiekt działań innych osób, demaskując sytuację izolowania i zależności osobistej. Drugą reprezentuje model relacji personelu i podopiecznych, charakteryzujący się indywidualistycznym podejściem do potrzeb osoby niepełnosprawnej, z poszanowaniem jej prawa do autonomii i samostanowienia. Konfrontacja tych dwóch perspektyw i obszarów zagadnień jest przedmiotem rozważań w niniejszym artykule.
EN
The paper is intended to show a system of institutional care for people with intellectual disabilities, which is characterized by a kind of ambivalence. The whole disquisition is based on two fundamental and dichotomous categories: control and subordination versus autonomy and independence. Each of these categories is connected with one of two perspectives within which a residential care facility can be captured. The first one arises from Goffman’s vision of a total institution, where a unit is presented as an objectified subject of other people’s actions, revealing a situation of isolation and personal dependence. The second perspective presents a model of relationships between the personnel and their charges; it is characterized by an individualistic approach toward the needs of people with disabilities regarding their right to autonomy and self-determination. The confrontation between these two perspectives and areas of issues is discussed in this paper.

Year

Volume

18

Issue

2

Pages

72-88

Physical description

Dates

published
2022

Contributors

References

  • Arndt, Sandra A., Moira Konrad, and David W. Test. 2006. “Effects of the self-directed IEP on student participation in planning meetings.” Remedial and Special Education 27(4):194-207. doi: https://doi.org/10.1177/2165143414544359
  • Barnes, Coli and Geof Mercer. 2003. Disability. Cambridge, MA: Polity Press.
  • Bekkema, Nienke et al. 2015. “‘To move or not to move’: A national survey among professionals on beliefs and considerations about the place of end-of-life care for people with ID.” Journal of Intellectual Disability Research 59(3):226-237. doi: https://doi.org/10.1111/jir.12130
  • Björnsdóttir, Kristin, Guorun V. Stefánsdóttir, and Astriour Stefánsdóttir. 2015. “‘It’s my life’: Autonomy and people with ID.” Journal of ID 19(1):5-21. doi: https://doi.org/10.1177/1744629514564691
  • Brown, Fredda et al. 1998. “Selfdetermination for individuals with the most severe disabilities: Moving beyond Chimera1.” The Journal of the Association for Persons with Severe Handicaps 23(1):17-26. doi: https://doi.org/10.2511/rpsd.23.1.17
  • Carlson, Licia. 2010. The faces of intellectual disability: Philosophical reflections. Bloomington. IN: Indiana University Press.
  • Charmaz, Kathy. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Thousand Oaks, CA: Sage.
  • Charmaz, Kathy. 2019. “Experiencing Stigma and Exclusion: The Influence of Neoliberal Perspectives, Practices, and Policies on Living with Chronic Illness and Disability.” Symbolic Interaction 43(1):21-45. doi: https://doi.org/10.1002/symb.432
  • Chartres, Dianne and John Brayley. 2010. Office of the public advocate South Australia: Submission to the productivity commission inquiry into disability care and support. Collinswood: Office of the Public Advocate.
  • Crocker, Allen C. 1988. “Medical-care for adults with developmental-disabilities.” Jama-Journal of the American Medical Association 260(10):1455-1455. doi: https://doi.org/10.3389/fpubh.2014.00083
  • DuBois, Brenda and Karla K. Miley. 2011. “Social Work: An Empowering Profession. 7th Edition. Boston, MA: Pearson.
  • Dunn, Michael C., Isabel C. Clare, and Anthony J. Holland. 2008. “Substitute decision-making for adults with ID living in residential care: Learning through experience.” Health Care Analysis 16(1):52-64. doi: https://doi.org/10.1007/s10728-007-0053-9
  • Dunn, Michael C., Isabel C. Clare, and Anthony J. Holland. 2010. “Living ‘a life like ours’: Support workers accounts of substitute decision-making in residential care homes for adults with intellectual disabilities.” Journal of Intellectual Disability Research 54(2):144-160. doi: https://doi.org/10.1111/j.1365-2788.2009.01228.x
  • Geniene, Rasa and Egle Sumskiene. 2016. “Reform of the residential care in Lithuania from the perspective of institutional theory.” Socialine Teorija Empirija Politikair Praktika 12:74-89. doi: https://doi.org/10.15388/STEPP.2016.12.9818
  • Glaser, Barney. 1978. Theoretical Sensitivity. San Francisco: Sociology Press.
  • Glaser, Barney and Anselm L. Strauss. 1967. The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing Company.
  • Goffman, Erving. 1961. Asylums: Essays on Social Situation of Mental Patients and Other Inmates. Garden City: Doubleday Anchor Book.
  • Goffman, Erving. 1967. Interaction Ritual: Essays on Face-to-Face Behavior. New York: Doubleday Anchor.
  • Goffman, Erving. 1979. Gender Advertisements. New York: Harper and Row.
  • Gonzalez-Rodriguez, Ruben and Maria C. Fernandez. 2017. “Attention to disability in residential care facilities.” Cuadernos de Trabajo Social 30(2):403-415. doi: https://doi.org/10.5093/pi2018a4
  • Goodley, Dan. 2000. Self-advocacy in the lives of people with intellectual disabilities: The politics of resilience. Buckingham: Open University Press.
  • Granosik, Mariusz. 2006. Profesjonalny wymiar pracy socjalnej. Katowice: Wydawnictwo Naukowe “Śląsk.”
  • Harris, Nicola, Antonia Beringer, and Margaret Fletcher. 2016. “Families’ priorities in life-limiting illness: Improving quality with online empowerment.” Archives of Disease in Childhood 101(3):247-252.
  • Hawkins, Rebecca, Michael Redley, and Anthony J. Holland. 2011. “Duty of care and autonomy: How support workers managed the tension between protecting service users from risk and promoting their independence in a specialist group home.” Journal of Intellectual Disability Research 55(9):873-884. doi: https://doi.org/10.1111/j.1365-2788.2011.01445.x
  • Hoole, Lucy and Sally Morgan. 2011. “‘It’s only right that we get involved’: Service-user perspectives on involvement in learning disability services.” British Journal of Learning Disabilities 39(1):5-10. doi: https://doi.org/10.1111/j.1468-3156.2009.00563.x
  • Kelly, Fionnola et al. 2019. “A case-study of policy change in residential service provision for adult people with intellectual disability in Ireland.” Health and Social Care in the Community 27(5):E760-E768. doi: https://doi.org/10.1111/hsc.12803.
  • Klepikova, Anna. 2019. “Residential care institutions for people with disabilities in Russia: questioning totality.” Journal of Social Policy Studies 17(3):453-464. doi: https://doi.org/10.17323/727-0634-2019-17-3-453-464
  • Lennox, Nicholas G., Justine N. Diggins, and Antoni M. Ugoni. 1997. “The general practice care of people with intellectual disability: Barriers and solutions.” Journal of Intellectual Disability Research 41:380-390. doi: https://doi.org/10.1111/j.1365-2788.1997.tb00725.x
  • Lincoln, Yvonna S. and Egon G. Guba. 1985. Naturalistic Inquiry. Beverly Hills, CA: Sage.
  • Lonkila, Markku. 1995. “Grounded theory as an emerging paradigm for computer-assisted qualitative data analysis.” Pp. 41-51 in Computer-Aided Qualitative Data Analysis, edited by U. Kelle. London: Sage.
  • Mahone, Irma H. et al. 2011. “Shared decision-making in mental health treatment: Qualitative findings from stakeholder focus groups.” Archives of Psychiatric Nursing 25(6):27-36. doi: https://doi/org/10.1016/j.apnu.2011.04.003
  • Marsland, Dave, Peter Oakes, and Caroline White. 2015. “Abuse in care? A research project to identify early indicators of concern in residential and nursing homes for older people.” Journal of Adult Protection 17(2):111-125. doi: https://doi.org/10.1108/JAP-08-2014-0027
  • Meininger, Herman P. 2001. “Autonomy and professional responsibility in care for persons with ID.” Nursing Philosophy 2(3):240-250. doi: https://doi.org/10.1046/j.1466-769X.2000.00065.x
  • Olney, Marjorie F. 2001. “Communication strategies of adults with severe disabilities.” Rehabilitation Counseling Bulletin 44(2):87-94. doi: https://doi.org/10.1177/003435520104400205
  • Patton, Michael Q. 2001. Qualitative evaluation and research methods. Thousand Oaks, CA: Sage.
  • Richards, Lyn. 2005. Using NVivo in Qualitative Research. London, Los Angeles: Sage.
  • Saunders, Benjamin, Jenny Kitzinger, and Celia Kitzinger. 2014. “Anonymising interview data: Challenges and compromise in practice.” Qualitative Research 15(5):616-632.
  • Saunders, Benjamin, Jenny Kitzinger, and Celia Kitzinger. 2015. “Participant anonymity in the internet age: From theory to practice.” Qualitative Research in Psychology 12(2):125-137.
  • Shakespeare, Tom. 1996. “Disability, Identity and Difference.” Pp. 94-113 in Exploring the Divide Leeds, edited by C. Barnes and G. Mercer. Leeds: Disability Press.
  • Strauss, Anselm L. and Juliet Corbin. 1990. Basics of Qualitative Research. London: Sage.
  • Sumskiene, Egle and Urte L. Orlova. 2015. “Sexuality of ‘Dehumanized People’ across Post-Soviet Countries: Patterns from Closed Residential Care Institutions in Lithuania.” Sexuality and Culture 19(2):369-387. doi: https://doi.org/10.1177/0081246316678154
  • Trip, Henrietta et al. 2016. “The role of key workers in supporting people with intellectual disability in the self-management of their diabetes: A qualitative New Zealand study.” Health and Social Care in the Community 24(6):789-798. doi: https://doi.org/10.1111/hsc.12262
  • Wahmsley, Jan and Kelly Johnson. 2003. Inclusive research with people with learning disabilities: Past, present and futures. London, New York: Jessica Kingsley Publishers.
  • Wehmeyer, Michael L, Abery, Brian H., Mithaug Dennis E., Stancliffe, Roger J. 2003. Theory in Self-Determination: Foundations for Educational Practice. Springfield, IL: Charles C Thomas Publisher, LTD.
  • Wiltshier, Fiona. 2011. “Researching with NVivo.” Forum: Qualitative Social Research 12(1). doi: https://doi.org/10.17169/fqs-12.1.1628

Document Type

Publication order reference

Identifiers

Biblioteka Nauki
2105591

YADDA identifier

bwmeta1.element.ojs-doi-10_18778_1733-8069_18_2_04
JavaScript is turned off in your web browser. Turn it on to take full advantage of this site, then refresh the page.