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Jawność danych dawców komórek rozrodczych i zarodków – wybrane zagadnienia

100%
Czech E. K.
Roczniki Nauk Prawnych
|
2019
|
vol. 29
|
issue 4
7-22
PL
Problem jawności danych dawców komórek bądź zarodków jest tematem nabierającym większego znaczenia w praktyce prawniczej i doznaje aktualizacji przy orzeczeniach sądów podejmujących decyzje w tym zakresie, jak w przypadku sądu niemieckiego, potwierdzającego prawo osoby urodzonej z zastosowaniem metody in vitro poznania danych biologicznego ojca. Niniejsze opracowanie ma na celu zidentyfikowanie problemów prawnych wynikających głównie z unormowań zawartych w ustawie o leczeniu niepłodności oraz udzielenia odpowiedzi, czy dają one gwarancję zachowania anonimowości dawców.
EN
Breeding cells and embrios donors’ data disclosure becomes more important subject in legal practice and it is being updated with court decisions adjudicating in this matter, e.g. German court confirming the right of a person born after an in vitro fertilization procedure to learn personal data of his/hers biological father. The study aims to identify legal problems arising mainly from the regulations contained in the Act on the treatment of infertility and to provide an answer to the question of guarantee of the donors’ anonymity.
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Conditions for the Admissibility of Scienti C Research in Biomedicine Biobanking: A Challenge in Times of Big Data

80%
Krekora-Zając D.
Studia Iuridica
|
2018
|
vol. 73
57-71
EN
The subject of the article is the analysis of the rights of donors donating their biological samples to biobanks in the 21st century. Issues regarding donor rights have been analyzed since the 1980s, however, changing times, creating Big Data databases as well as evolving legal awareness of donors meant that today the role of donors in the biobanking process should be perceived differently. Donors become active subjects of scientific research which is connected with the need to answer questions about the obligations to inform them about the results of scientific research conducted on their samples or incidental findings. Likewise, the combination of data registers and the creation of Big Data basis require the re-thinking of terms such as the protection of personal data of donors or the anonymisation of their data. These issues are imposed by negligence or complete lack of legal regulation of the biobanking, which makes the legal protection of the rights of donors dependent on the will of a particular biobank. All these phenomena result in the necessity of new approaches to the rights of donors and their inclusion in the future legal regulation.
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