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Demograficzno-społeczne uwarunkowania poziomu wiedzy o hemofilii u osób nie dotkniętych tym problemem zdrowotnym

100%
Walęcka-Matyja K., UŁ I. P.
Acta Universitatis Lodziensis. Folia Psychologica
|
2004
|
vol. 08
EN
The group which has been examinated was composed of 82 persons (40 women and 42 men). The following method was questionnaire prepared by autor of this article. The purpose of the study was described the level of the knowledge of hemophilia in examined group of people, who were not suffernig from hemophilia nad comparison level of the knowledge of hemophilia between the women and the men. The results indicated the fact that few of the women and the men was able to explain correctly and enough the conceptions connected with hemophilia (definition, symptoms and kinds of this disease. There are statistically significant differences between the sexes regarded in range of the symptoms and kinds of hemophilia. The women often than men had more wide view of disease like hemophilia. Relatively more examinated persons were given properly answers, concerned social mtyhs of hemophilia.
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The Unearned Mark: The History of the Child Stigma

51%
Szubert M.
Literatura Ludowa
|
2020
|
issue 1
EN
The aim of the article is to shed light on cases of stigma among the youngest victims ofthe AIDS epidemic, a topic that Polish readers may not be familiar with. Since the verybeginning of the AIDS epidemic, hemophiliacs have been classified as belonging to theso-called highest risk group, next to homosexuals, drug addicts, and prostitutes. In the ageof hysterical anxiety centered around HIV, young hemophiliacs quickly became the subjectof social repression and persecution.An extremely valuable material that shows the strength of the social stigma, as seen andexperienced from the perspective of a young patient, is Ryan White’s diary documenting hisillness. Ryan’s autobiography illustrates perfectly the development of a negative mythologyconcerning the disease and reveals its destructive potential. The portrayal of the young hemophiliacis a compendium of knowledge about the social mechanisms of stigmatisation,and in particular of strategies aimed to control fear.
PL
Celem artykułu jest przybliżenie mało znanych polskiemu czytelnikowi przypadków stygmatyzacji najmłodszych ofiar epidemii AIDS. Hemofilicy od samego początku epidemii AIDS znaleźli się w tzw. najwyższej grupie ryzyka, obok homoseksualistów, narkomanów i prostytutek. W dobie histerycznego lęku budowanego wokół HIV, młodzi hemofilicy szybko stali się przedmiotem społecznych represji i prześladowań.Niezwykle cennym materiałem, ukazującym siłę społecznej stygmatyzacji, widzianej i doświadczanej z perspektywy młodego pacjenta, jest dziennik z czasu choroby Ryana White’a (My Own Story). Autobiografia Ryana ilustruje doskonale proces budowania negatywnej mitologii choroby, obnażając jednocześnie jej destrukcyjny potencjał. Wystąpienie młodego hemofilika to prawdziwe kompendium wiedzy na temat społecznych mechanizmów stygmatyzacji, w tym przede wszystkim dotyczących strategii zarządzania strachem. 
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