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EN
Purpose: The aim of the study is comparative analyze the Health Related Quality of Life (HRQOL); effect of social-demographic factors on quality of life also taking into account four domains and effect of the duration of disease on quality of life. Material and Methods: The evaluation of the quality of life in patients with rheumatoid arthritis (RA)(n=64), ankylosing spondylitis (AS) (n=60) and systemic sclerosis (SSc) (n=63) was conducted with the use of a standardized research tool - WHOQOL Bref. Results: The conducted general analysis of particular life quality domains showed that for RA patients the weakest domain was the one related the environment (11.3) and physical health (11.6), with the strongest social domain (14.7). The respondents with AS had the lowest score for physical health (12.2), also with the strongest social domain (14.2). The results obtained from SSc patients are slightly better than for RA and AS patients as regards physical health (12.6) and the environment (13.9). Conclusions: It seems that, taking into account the patient’s own opinion about the treatment and its consequences by means of QOL evaluation, makes the patient a partner in the process of treatment and nursing, which leads to a greater humanization of medicine.
EN
Systemic sclerosis (SSc) is a chronic and progressive disease. It leads to multi-organ failure, patient disability and thus a decrease in their quality of life. It usually starts at the age of 30-50, which makes it difficult to perform social roles and professional activity, especially when the disease is advanced. The aim of the study is to present deficits in the functional efficiency of the patient in the course of systemic sclerosis. Case study includes a 68-year-old woman with a recognized form of systemic sclerosis. We can observe self-care deficits, as well as difficulties in movement resulting from pain. The patient avoids contact with her relatives, which is due to her low self-esteem resulting from the feeling of helplessness in the course of the disease. The nurse of the primary care in cooperation with the patient and her family develops a care plan aimed at improving the self-care and care efficiency of the family.
PL
Twardzina układowa (SSc – systemic sclerosis) to choroba przewlekła i postępująca. Prowadzi do niewydolności wielonarządowej, niepełnosprawności chorych, a tym samym obniżenia jakości ich życia. Zwykle rozpoczyna się ona pomiędzy 30 a 50 rokiem życia, co utrudnia pełnienie ról społecznych i aktywność zawodową, szczególnie gdy choroba jest zaawansowana. Celem pracy jest przedstawienie deficytów sprawności funkcjonalnej pacjentki w przebiegu twardziny układowej. Opis przypadku odnosi się do 68-letniej pacjentki z rozpoznaną postacią uogólnioną twardziny układowej. Chora wykazuje deficyty samoopieki i samopielęgnacji oraz trudności w poruszaniu się wynikające z dolegliwości bólowych. Unika kontaktów z najbliższymi, co jest spowodowane jej niską samooceną wynikającą z poczucia bezradności w przebiegu choroby. Pielęgniarka podstawowej opieki zdrowotnej we współpracy z pacjentką oraz jej rodziną opracowuje plan opieki zmierzający do poprawy samoopieki i wydolności opiekuńczej rodziny.
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