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Funkcjonowanie wzrokowe osoby z progresywną słabowzrocznością – studium indywidualnego przypadku

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Czerwińska K.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

2018

issue 20

275-294

The aim of the article is to present the subjective perspective of a person with congenital low vision who experienced gradual vision deterioration up to total loss. The case study method was used, in which the narrative biographic interview was the main technique of collecting data. In the analysed narratives, certain milestones were identified in the process of coping with the consequences of progressive impairment. Those were the situations when the subject was no longer able to perform a specific task, which she had earlier performed under visual control. They made the subject realise the progressive nature of the disease and inevitably confronted her with the acquisition of permanent severe impairment. Those situations caused temporary disruption of her psychological balance and increased her demand for emotional support. With time, however, they also motivated the subject to use previously rejected rehabilitation devices and techniques. Lack of knowledge of functional implications of eye conditions (including reduced acuity and contrast sensitivity, field defects, light/dark adaptation problems, etc.) among family members and other people hindered the process of providing optimal instrumental support to the subject.

Gradual loss of vision and performing the role of father

99%

Czerwińska K.

Interdyscyplinarne Konteksty Pedagogiki Specjalnej

2020

issue 28

Performing social roles, including family-related ones, by people with visual impairment is associated with experiencing various types of difficulties It is basically a consequence of the socially established negative image of these people who areperceived as not fully competent and requiring assistance. Previous few studies devoted to the motherhood of blind and partially sighted women indicate relatively frequent reactions of their social environment expressing the belief that a visually impaired woman is not able to perform her role as a wife and mother in a proper way. The psychosocial situation of fathers with visual impairment is rarely analysed in research activities, and knowledge of the relationship between gradual loss of vision and experience of fatherhood is relatively poor. The aim of the article is to present the results of a qualitative study focused on learning the subjective experience of performing the role of a parent by a man with progressive vision loss. In the biographical study of an individual case, the narrative interview technique was used, and the analysis of the collected material was referred to such spheres of experiencing fatherhood as: the concept of role, sources of satisfaction and positive experience related to the role, perceived relationships between the way of performing the role and progressive impairment.

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2 Interdyscyplinarne Konteksty Pedagogiki Specjalnej

2 Czerwińska K.

1 2020

1 2018

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Funkcjonowanie wzrokowe osoby z progresywną słabowzrocznością – studium indywidualnego przypadku

Gradual loss of vision and performing the role of father